Tag: Guido Fawkes

A response to Guido Fawkes about his despicable use of my photosensitive seizures to score nasty political points

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Migraine aura: scintilating scotoma

Yesterday I contacted the Labour party about their Labour Live event promotion video because it made me ill, causing a partial seizure. The video didn’t carry a warning about the flashing images it contained. I have had an apology from Jennie Formby on behalf of the Party, and it looks like the video has been taken down. The response came within a couple of hours of my contacting her. I feel that’s a very reasonable and rapid response. I was concerned that the video may trigger seizures in other people who are susceptible, too. 

I contacted Jennie on Twitter, as well as sending a direct message to the Party, and an email. The Tweet received a prompt response, for which I am very  grateful. I figured the Labour party get many emails and it may take a while for mine to be seen. 

It’s highly likely that the Labour party hired a communications and media company to undertake making the promotion video. So this issue needs to be addressed with those who actually did the work in putting the video together, too. 

I do feel the Labour party have responded appropriately. Although my hypersensitivity to flickering and flashing images and light is quite rare, it does make my time on social media very difficult. I only wish that Facebook and Twitter would respond as quickly to my complaints about the abundance of flashing GIFs that I encounter online, which sadly make me very ill, and can incapacitate me for days on end.

I also had the following excellent email response yesterday morning from the Labour Party:

Dear Sue,

Many thanks for your email. Thanks also for your support for the Labour Party – together we truly can build a Britain for the many not the few.

I am deeply sorry to hear that the video had this effect on you. I have noted your concerns and feedback and passed these onto the relevant team. They will factor this into any future video content we create. 

Many thanks for letting us know – it is very important to us that we can create video content that is accessible to all.

Best wishes,

Maria

Membership Services and Correspondence

The Labour Party.

I am more than happy with that swift response, because it indicates a party that cares about inclusion, and is more than willing to take responsibility for ensuring their material is up to a high health and safety standard. My condition isn’t very common, I guess I represent what you would call a very small minority group. Yet the Labour party have gone out of their way to ensure my wellbeing, and the safety of those who have the same level of sensitivity to flickering and flashing images. And best of all, the information I provided will be applied to released video material by the Party in future. That’s a very good outcome. 

All the more reason why I’m not happy that Guido Fawkes (AKA Paul Staines, the right wing politico gossip- monger) has used my illness to try and score political points. I am unusually very sensitive to flickering and flashing images, and don’t feel it’s appropriate to use someone’s illness and misfortune to make a tenuous attack on the Labour party. Or my account details, for that matter. In fact it’s a despicable thing to do.

I have requested that he removes the Tweet.

I have to say that it’s to their credit that Labour responded so quickly to my message.

I have a rare condition and don’t blame the makers of the video for being unaware of that. The Party responded promptly and appropriately. Unlike Facebook and Twitter, who have never responsed to my previous complaints about the flashing images that are frequently posted around social media. Christmas and New Year were particularly difficult for me on Facebook, for example, because of well meaning people sending me flashing images with their Christmas greetings. It caused me so much difficulty that I had to avoid my inbox for a couple of weeks. That’s because I am very very sensitive to flickering lights and flashing colours. Unfortunately such images can leave me ill and incapacitated for days.

Visual reflex seizures induced by complex stimuli may be triggered by patterned and flashing displays that are now ubiquitous, especially on social media. This said, ordinary fluorescent lighting, driving, walking past railings, moving escalators, looking at ripples on a pond and some geometric patterns may also trigger illness and seizures in some people who are particularly sensitive. I’m an individual who is unfortunately both photosensitive and pattern-sensitive, though I haven’t always been.

Sometimes, in susceptible people, seizures can happen because of the properties of video displays, the triggers are identified as perceived brightness, pattern, flicker frequency, and colour contrasts. 

Fawkes is a nasty gossip-mongering vulture, who will use anything he can to promote his vicious right wing views, while  being among the first in line to attack a “snowflake” like me. Some of his equally virulent followers commenting on the thread under his post thought my seizure was hilarious. 

That’s pretty low to stoop, even for someone who is a master at consistently clearing the pole in right wing moral limbo dancing competitions. 

A little about photosensitive and pattern-induced illness and seizures

Not everyone who has seizures because of flickering and flashing images has epilepsy. I don’t. Photosensitive epilepsy is quite rare, it’s a type of epilepsy, in which all, or almost all, seizures are triggered by flashing or flickering light. Only one in a hundred people with epilepsy have the photosensitive type of epilepsy. That’s a very small percentage of the population. However, some people complain that flashing imagery makes them feel generally unwell, too. A few people experience dizziness and nausea, but don’t have seizures. Others have flashing or flicker-induced migraines. I also suffer from migraines.

Both natural and artificial light may trigger seizures. In my case, it is thought that an illness I have called lupus has caused neurological changes that have led to the photosensitivity problems I experience. At first, I was diagnosed with classical migraine, as there is an overlap with seizure symptoms. An “aura” is common for both, which includes scotoma – a kind of temporary blindness, or ‘holes’, or sparkling shapes that take up large parts of people’s field of vision, severe vertigo, confusion, extreme mood and perception changes, coordination and speech difficulties, tingling and numbness, nausea and so on. Often there is muscle rigidity and twitching, or jerking. In my case, this usually affects my legs when it happens. Sometimes people lose consciousness during an attack, too.

My own symptoms started at the same time as the onset of the wider symptoms of lupus – susceptibility to infections, joint and tendon pain and inflammation, nerve pain, blood abnormalities and so on. Lupus is an autoimmune disease that can affect many organs and parts of the body. Very often it includes skin photosensitivity too, many of us develop a severe rash and illness in sunlight, even when we wear a sunblock.

Various types of seizure can be triggered by flashing or flickering light. These include tonic-clonic, absence, myoclonic and focal seizures. The most common is a tonic-clonic seizure. The seizure(s) will usually happen at the time of, or shortly after, looking at the “trigger.” Sometimes people may experience more than one kind of seizure, too. 

Again, photosensitive seizures affect a very small percentage of the population. Epilepsy -related forms of the condition usually begins before the age of 20, most commonly between the ages of seven and 19. Photosensitive epilepsy affects more girls than boys. 

The exact spacing of a pattern in time or space is important and varies from one individual to another: a person may readily experience seizures when exposed to lights that flash seven times per second, but may be unaffected by lights that flash twice per second or twenty times per second. Stimuli that fill the entire visual field are more likely to cause seizures than those that appear in only a portion of the visual field. 

Stimuli perceived with both eyes are usually much more likely to cause seizures than stimuli seen with one eye only (which is why covering one eye may allow people to avoid seizures when presented with visual challenges). Some people are more sensitive with their eyes closed; others are more sensitive with their eyes open.

Not everyone who experiences seizures through flicker sensitivity has epilepsy. A seizure without a known cause is called an “idiopathic” seizure. Those are the kind that I suffer from, though I am currently seeing a neurologist to try and work out why I am having the seizures. I have had an MRI scan to see if there are any brain lesions or inflammation, caused by the lupus, and I am waiting for some further tests.

A seizure is the result of experiencing a surge of electrical activity in the brain. The electrical disturbance can, as outlined, produce a variety of physical symptoms.

UK television broadcasters and studios now screen content through the Harding FPA Test, an objective standard of assessment of potential to trigger seizures in those susceptible to photosensitive seizures. I’d like to see social media platforms use the same standard of testing on GIFs and other moving images.

It’s now thought (by my GP) that my sensitivity to flickering has happened because of how lupus has affected my neurological system. I developed lupus during a pregnancy in my thirties. I’m so sensitive to flickering that I can’t drive, as lamp posts, trees and telegraph posts along the road act like a strobe light in a moving car, and trigger severe symptoms, such as the scotoma, which causes temporary blindness, severe vertigo, confusion, coordination difficulties and partial seizures. I can’t even walk past railings without experiencing problems, moving escalators also make me ill, and more recently, some geometric shapes with highly contrasting colours, like black, red and /or white stripes, have made me ill, too.

The word hertz (Hz) refers to how often something happens in a second. For example, it can mean the number of times something flashes or flickers in one second. It can also mean the number of times the scanning lines on televisions and computer monitors ‘refresh’ themselves in one second.

Most people with photosensitive epilepsy are sensitive to 16-25 Hz. Some people may be sensitive to rates as low as 3 Hz and as high as 60 Hz. I’ve yet to find out what ranges I am sensitive to. I know that a visible flicker on fluorescent lighting triggers seizures.I

I think a campaign to make social media a more “friendly” place for people like me would be a good thing.

I hope this article will help to raise awareness of this condition, which is extremely intrusive, restrictive and distressing.

Ways to reduce the risk of seizures if you have photosensitive epilepsy

  • Avoid looking at anything that you know may trigger a seizure. (Not aways easy!)
  • Avoid things that can increase your risk of having a seizure. These can include feeling tired or stressed, not having enough sleep, low blood sugar and drinking alcohol.
  • If you take epilepsy medicine, always take it as prescribed by your doctor.
  • If you look at something that might trigger a seizure, don’t close your eyes. This could increase your risk of having a seizure. Instead, immediately cover one eye with the palm of your hand and turn away from the trigger. This reduces the number of brain cells that are stimulated and reduces the risk of a seizure happening.

Related

One of the key reasons I have faith in the Labour Party, and give them my continued support, is their policies, which are inclusive, recognise the value of diversity and treat everyone’s life as having equal worth. This is such a stark contrast to Conservative policies, which emphasise competitive individualism and an elitist perspective of society, which is profoundly isolating, socially divisive and leads to exclusion and outgrouping.

This in particular impressed me last year, released in the run up to the general election –  Nothing about you without you – the Labour party manifesto for disabled people

 


 

I don’t make any money from my work. I’m disabled through illness and on a very low income. But you can make a donation to help me continue to research and write free, informative, insightful and independent articles, and to provide support to others. The smallest amount is much appreciated – thank you.

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Once you hear the jackboots, it’s too late.

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Dr. Lawrence Britt examined the fascist regimes of Hitler (Germany), Mussolini (Italy), Franco (Spain), Suharto (Indonesia) and several Latin American regimes. Britt found 14 defining characteristics common to each, and it is becoming increasingly difficult to overlook some of the parallels with increasingly authoritarian characteristics of our own right wing government here in the UK.

Controlled mass media is one example of such a defining feature of fascism, with “news” being directly controlled and manipulated by the government, by regulation, or via sympathetic media spokespeople and executives. Censorship is very common. And then there is an obsession with “National Security” –  with fear being used as a “motivational tool” by the government on the public.

In June 2013, a visit by Government national security agents to smash computer hard drives at the Guardian newspaper offices hit the news surprisingly quietly, when Edward Snowden exposed a gross abuse of power and revealed mass surveillance programmes by American and British secret policing agencies (NSA and GCHQ) last year. (More detailed information here).

David Miranda, partner of Glenn Greenwald, Guardian interviewer of the whistleblower Edward Snowden, was held for 9 hours at Heathrow Airport and questioned under the Terrorism Act. Officials confiscated electronics equipment including his mobile phone, laptop, camera, memory sticks, DVDs and games consoles. 

This was a profound attack on press freedoms and the news gathering process, and as Greenwald said: “To detain my partner for a full nine hours while denying him a lawyer, and then seize large amounts of his possessions, is clearly intended to send a message of intimidation.”

Absolutely. Since when was investigative journalism a crime?

Even the Telegraph columnist Janet Daley remarked that these events were like something out of East Germany in the 1970s.

This certainly raised critically important legal and ethical issues, for those involved in journalism, especially if some kinds of journalism can be so easily placed at risk of being politically conflated with terrorism.

Once again, the mild and left wing/liberal Guardian is under attack by our Tory-led government. In an extraordinary and vicious attack on The Guardian newspaper, Department for Work and Pensions (DWP) communications chief and senior government spin doctor, Richard Caseby, has called for the newspaper to be “blackballed” and prevented from joining the new press regulatory body, because “day after day it gets its facts wrong.” Remarkably, “ineptitude or ideology” were to blame for what he deemed “mistakes” in the paper’s coverage of the DWP’s cuts to benefits. He called for the broadsheet to be kept out of the new Independent Press Standards Organisation (IPSO), set up after the Leveson Inquiry into media standards. 

As a former journalist at the Sun and The Sunday Times, Caseby certainly has an axe to grind against the paper that revealed how those right wing papers’ stablemate, the News Of The World, had hacked the voicemail of murdered teenager Millie Dowler, sparking the phone hacking scandal that prompted Rupert Murdoch to close the tabloid down.

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Richard Caseby, pictured when giving evidence to MPs as managing editor of The Sun.

In July 2011 it emerged that Cameron met key executives of Murdoch’s News Corporation 26 times during the 14 months that Cameron had served as Prime Minister. It was also reported that Murdoch had given Cameron a personal guarantee that there would be no risk attached to hiring Andy Coulson, the former editor of News of the World, as the Conservative Party’s communication director in 2007. This was in spite of Coulson having resigned as editor over phone hacking by a reporter. Cameron chose to take Murdoch’s advice, despite warnings from Nick Clegg, Lord Ashdown and the Guardian. Coulson resigned his post in 2011 and was later arrested and questioned on allegations of further criminal activity at the News of the World, specifically regarding the News International phone hacking scandal.

The Culture, Media and Sport Committee of the House of Commons served a summons on Murdoch, his son James, and his former CEO Rebekah Brooks to testify before a committee on 19 July. After an initial refusal, the Murdochs confirmed they would attend after the committee issued them a summons to Parliament. The day before the committee, the website of the News Corporation publication the Sun was “hacked”, and a false story was posted on the front page claiming that Murdoch had died. Murdoch described the day of the committee “the most humble day of my life.”  He argued that since he ran a global business of 53,000 employees and that the News of the World was “just 1%” of this, he was not ultimately responsible for what went on at the tabloid. 

On 1 May 2012, the Culture, Media and Sport Committee issued a report stating that Murdoch was “not a fit person to exercise the stewardship of a major international company.”

On 3 July 2013 Exaro and Channel 4 news broke the story of a secretly recorded tape. It had been recorded by Sun journalists, and in it Murdoch can be heard telling them that the whole investigation was “one big fuss over nothing”, and that he, or his successors, would “take care” of any journalists who went to prison.

He said: “Why are the police behaving in this way? It’s the biggest inquiry ever, over next to nothing.” Murdoch believes that he doesn’t have to be accountable. His initial refusal to testify, despite being summonsed, is extraordinarily indifferent and arrogant.

In connection with Murdoch’s testimony to the Leveson Inquiry “into the ethics of the British press,” editor of Newsweek International, Tunku Varadarajan, referred to him as “the man whose name is synonymous with unethical newspapers.”

Not a shred of concern raised about any of this or Murdoch’s nasty and corrupt myth industry, and right wing scapegoating empire, coming from our government, a point worth reflecting on for a moment. Miliband said the phone-hacking was not just a media scandal, but it was a symbol of what was wrong with British politics.  He called for cross-party agreement on new media ownership laws that would cut Murdoch’s current market share, arguing that he has “too much power over British public life.He said: “If you want to minimise the abuses of power, then that kind of concentration of power is frankly quite dangerous.” 

Meanwhile, Iain Duncan  Smith is “monitoring” the BBC for any “left wing bias”. Gosh, I just bet that took the jolly well-known ardent commie Chris Patten by complete surprise…

The BBC Trust said that a programme called the “Future of Welfare”, written and presented by John Humphrys, breached its rules on impartiality and accuracy. It found that the programme had failed to back up with statistics claims that there was a “healthy supply of jobs”.

Iain Duncan Smith, the Work and Pensions Secretary, defended Humphrys as a “robust broadcaster” and said the documentary was “thoughtful and intelligent”. And perhaps most importantly, it endorsed the Governments’ punitive and callous welfare  “reforms.”

Duncan Smith was infuriated by the BBC’s coverage of the ruling, which he felt gave “too much airtime to campaigners.” Too much for what, exactly, we have to wonder. Perish the thought that anyone may dare to poke at the half-timbered facade of Tory ideology – Duncan Smiths’ rhetoric is a painful parody of fact that loudly dismisses – and intentionally obscures – the private despair and ruined lives of so many of those least able to speak up for themselves.

He said: “I have just watched reporting on the BBC about the Government winning a High Court judgement on the Spare Room Subsidy (that’s the Bedroom Tax to you and I) that once again has left me absolutely staggered at the blatant Left-wing bias within the coverage. And yet the BBC Trust criticise John Humphrys’s programme, which was thoughtful, intelligent and born out of the “real” life experience of individuals.”  The same Duncan Smith, who chooses to deny the all too painful and impoverished real life experiences his policies have inflicted on many. He prefers to lie them away from public attention. Or dismiss them as merely “anecdotal”.

Duncan Smith’s credibility doesn’t stand up to much scrutiny here, as someone attempting to verify “accuracy” and er…  statistical claims. Ah, yes. The Department of Work and Pensions – Iain Duncan Smiths’ Department – has a long track record of misusing statistics, making unsubstantiated inferences and stigmatising claimants, and it’s clear these are tactics used to attempt to vindicate further welfare cuts. In fact several minsters, including Cameron, have been officially rebuked by the Office of National Statistics for telling lies, and in Duncan Smith’s case – on at least 3 occasions this past 12 months despite warnings regarding his dishonest claims in the media, as well as in parliament. 

So considering all of this, it was with some incredulity that I read Caseby’s comments in the Huff Post earlier: “Should the new IPSO members accept (editor Alan Rusbridger) as a johnny-come-lately? No, rather he should be blackballed. Sorry, but the Guardian isn’t fit to become a member of IPSO until it starts valuing accuracy.”

And: “In the end, of course, it’s IPSO’s decision. But should the new standards body be so gracious as to invite him in, I guess I’ll be waiting to lodge the first complaint.” He said an MP had complained to the Office for National Statistics over The Guardian’s reporting of its data. I bet that was said without a trace of irony, too.

So, if alleged (and improbable) benefits inaccuracies “should get [The] Guardian blackballed,” what is this spin doctor’s recommendation for the perpetual propagandarising, lying, right wing media and a lying government minister’s serial offensive “benefits inaccuracies”?

Oh … of course, this is Iain Duncan Smiths’ relatively new pet guard dog.

An interesting choice of word from Caseby – “blackballing”, which is a rejection in a traditional form of secret ballot, where a white ball ballot constitutes a vote in support and a black ball signifies opposition. This system is typically used where a club (or Lodge) rules provide that, rather than a majority of the votes, one or two objections are sufficient to defeat a proposition. Since the seventeenth century, these rules have commonly applied to elections to membership of many gentlemen’s clubs and similar institutions such as in Freemasonry. It’s an apt term because of its association with conservatism, tradition and secrecy. 

In contrast, and unlike many whistleblowers who remain anonymous, Edward Snowden chose to be open and go public. Snowdens’ sole motive for leaking the documents was, in his words, “to inform the public as to that which is done in their name and that which is done against them.”  He believes that the global public is due an explanation of the motives of those who act outside of the democratic process.

To “protect democracy” we have governments that are subverting the law. This is a fundamental paradox, of course and Snowden saw this could lead to the collapse of democracy and critically endanger our freedom. And Snowden reminds us that what no individual conscience can change, a free press can. It has to be one that is free enough to allow a diverse range of political commentaries, rather than a stranglehold of right wing propaganda from the Murdoch empire and its ideological stablemates.

I think that the process of dismantling democracy started in May 2010 here in the UK, and has been advancing incrementally ever since, almost undetected at first, because of pervasive government secrecy and a partly complicit, dominant right wing media.

But once you hear the jackboots, it’s far too late.

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With big thanks to Robert Livingstone

Related 

The Transparency of Lobbying, non-Party Campaigning, and Trade Union Administration Bill is a calculated and partisan move to insulate Tory policies and records from public and political scrutiny, and to stifle democracy. The Government’s Lobbying Bill has been criticised by bloggers and campaigners from right across the political spectrum, with the likes of Owen Jones and Guido Fawkes united in agreement over this issue: that the Bill is a “Gagging Act”. Five Conservatives – Douglas Carswell, Philip Davies, David Davis, Zac Goldsmith and David Nuttall – voted against the Bill, whilst others also expressed concerns.

The Bill will treat charities, think tanks, community groups and activists of every hue as “political parties”. From small groups addressing local matters to big national organisations, all equally risk being silenced in the year before a general election, to avoid falling under electoral law. Any organisation spending £5,000 a year and expressing an opinion on anything remotely political must register with the Electoral Commission. Since most aspects of our public life are political, (and a substantial proportion of our private life has been increasingly politicised under this authoritarian government) this stifles much essential debate in election years when voters should be hearing and evaluating policy choices.

The ‘Let Lynton Lobby Bill’: Grubby Partisan Politics and a Trojan Horse 

 


I  don’t make any money from my work. But you can help Politics and Insights if you like by making a donation to help me continue to research and write free, informative, insightful and independent articles, and to provide support to others. The smallest amount is much appreciated – thank you.

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