Tag: Motability

Please let’s help Peter to maintain his mobility and independence

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Peter Nicholls's Profile Photo, Image may contain: 1 person

This is Peter, I’ve known him for a few years, through our mutual campaigning on Facebook to raise awareness of issues that affect disabled people.

Peter also has multiple health conditions – ME/CFS, fibromyalgia, chronic pain, chronic depression, painful nerve entrapments, and arthritic wear in his neck. These conditions leave him exhausted and debilitated for much of the time. Even doing the most simple tasks can severely exhaust him. Not only is Peter’s mobility substantially restricted at all times, there are many days when he is not even able to leave his bed due to profound fatigue,  a lack of energy and physical strength. He is unable to work, due to my impact of his health conditions.

For seven years, Peter received Disability Living Allowance (DLA) and then Personal Independence Payment (PIP). Under both awards, Peter also qualified for the enhanced mobility component. This meant that he could use this part of his lifefine benefit to lease a mobility car from the Motability scheme.

However, Peter was reassessed in January and despite the fact that Peter’s conditions are chronic, the assessor surprisingly decided that he now needs a lower level of support. This meant that Peter’s income was immediately cut by £50 per week.

Peter has appealed unsuccessfully through the Mandatory Reconsideration process, and is now going appeal the Department for Work and Pension’s decision at a tribunal court. However, the wait for appeals is currently long, and Peter has been told that his won’t likely happen until after Christmas 2018. In the mean time, Motability are taking back his car as they are no longer getting payments from the benefit agency.

The loss of income is becoming a struggle, but Peter tells me that the loss of his mobility car is absolutely devastating. He says: “A car gives someone like me freedom, it is autonomous mobility. I have no idea how I’m going to cope. Getting to and from bus stops is very hard. Buses end up causing me such pain and harm, that I cannot do anything once I’ve been on a journey. Taxis might be ok for one or two trips per week, but the cost soon becomes intolerable, and they restrict getting out of the house to just 2 or 3 times a week.

He added “I am appealing with the support of Disability Solutions West Midlands. They have an excellent record of overturning 90% of decisions on appeal, and on the evidence, they say my case is a good one. Therefore, once I finally get my appeal heard it is very likely I will have everything reinstated.”

Meanwhile, Peter is hoping to use crowd fund support to help him buy a car to help him over the difficulties and barriers he faces over the next six months or so. Without this support, Peter will be effectively housebound and unable to do everyday things, such as shopping, visiting the doctor and hospital, visiting friends, going for coffee or enjoying the outdoors. All of these things are vital his ongoing therapy, and basic inclusion in his community and wider society. 

Thousands of disabled people have already lost their specialist Motability vehicles because of the cruel Conservative cuts to PIP, and sadly, many more are likely to be affected. 

Personal Independence Payment is a non means tested benefit for people with a long-term health condition or impairment, whether physical, sensory, mental, cognitive, intellectual, or any combination of these. It is an essential financial support towards the extra costs that ill and disabled people face, to help them lead as full, active and independent lives as possible.

However, I’ve written at length about how the assessment process is unfit for purpose, and is creating distress and causing harm to disabled people. See for example: Government guidelines for PIP assessment: a political redefinition of the word ‘objective’, which discusses how, prior to the introduction of PIP, Esther McVey stated that of the initial 560,000 claimants to be reassessed by October 2015, 330,000 of these are targeted to either lose their benefit altogether or see their payments reduced.

Of course the ever-shrinking category of “those with the greatest need” simply reflects a government that has made a partisan political decision to cut disabled people’s essential income to fund a financial gift to the wealthiest citizens. There is no justification for this decision, nor is it “fair.”

That article also discusses government guidelines for PIP assessors or ‘health care professionals’. The PIP assessment is geared towards looking for “inconsistencies” in “functional limitations”. For example, if you say you can’t sit unaided for half an hour, but then say that you watch soaps on TV, it will be assumed you sit unaided for at least half an hour to watch TV, and that will be classed as a “discrepancy between the reported need and the actual needs of the claimant.”

The whole assessment is set up and designed to look for “inconsistencies.” In other words, the assessor is looking for any excuse to justify a decision that you are not among those in “greatest need” for a PIP award. The entire process happens within a framework of reducing welfare costs, after all. This makes a mockery of the government’s fondness for using the word “objective.”

As someone who went through a PIP assessment last year, I know how harrowing and utterly unfair they can be. I was awarded basic rate. I was one point short of an enhanced level award. In a report concerning the decision, I was told that because I had a degree (I graduated in 1996, Master’s in 2007), because I worked as a social worker (until becoming too ill to work in 2010), and because I had a driving licence in 1993 (I can no longer drive because of flicker induced seizures), I had “no evident cognitive difficulties” caused by my conditions. It seemed inconceivable to the assessor that my illness, which arose after I graduated, has caused cognitive difficulties since 2010. 

Assessors use any irrational and outrageous excuse they can to award the lowest amount possible.

I manage my health care and hospital appointments, shopping and so on because my son and other family members support me by taking me themselves.  I’ve been unable to drive for a few years now.

However, Peter depends on his motability vehicle to get out to appointments, to shop and to meet friends. Without his car he will be trapped in the house, and the loss will cause him hardship and distress. That’s why I thought a crowdfund appeal would be  appropriate. 

The appeal is to raise £1,500 to help replace the loss of PIP payments and replace or keep Peter’s essential mobility car, so he can stay mobile and remain able to leave the house. 

Please add your support for Peter here at Just Giving (Click).

 

 

 

Disabled mum took fatal overdose after she was refused PIP

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Susan Roberts was found dead because of a morphine overdose (Photo: Philip Coburn)

A disabled mum, Susan Roberts, was found dead at home following an overdose of morphine. Susan died just metres away from a heartbreaking 11-page letter she had written to the Department for Work and Pensions (DWP), detailing her suffering following being told she wasn’t eligible for Personal Independence Payment (PIP). 

Susan, a grandmother of eight, had survived four heart attacks. She died £4,000 in debt, after taking a fatal overdose within hours of being informed that her claim for PIP was unsuccessful. She had previously claimed Disability Living Allowance (DLA) and had been given an indefinite award, as her medical conditions were considered highly unlikely to get better.

The letter from the Department for Work and Pensions (Photo: Philip Coburn)

Susan was asked to apply for PIP by the DWP following the proposed closure of her DLA claim. Many people who have previously been eligible for DLA have found that they lose their support once they are reassessed for PIP. The government introduced PIP to replace DLA and to cut costs in 2013, as a part of their welfare “reform” programme, which inflicted cuts on the poorest citizens. The Conservatives claim that PIP “targets those most in need”. However, many people with the highest level of needs have been turned down for PIP after having indefinite or lifetime awards of DLA.

Susan’s tragic death also highlights that despite their claims, the government are not succeeding in “targeting the most vulnerable people”

Before taking a fatal dose of morphine, Susan had placed the paperwork from the DWP, which informed her that she had been turned down for PIP following mandatory review, a Do Not Resuscitate note and her unsent letter, on her dresser.

Susan was shocked when she was informed that she did not even qualify for an award of PIP at the lower rate. 

She began her heartbreaking letter: “Dear sirs, first of all, I request that you read this through carefully – this is my life after all.”

She said: “I am in a considerable state of depression after receiving your decision about my claim for PIP.”

Describing her health, she said: “My gall bladder needs to be removed because of multiple stones, weight loss, vomiting, excruciating pain – but specialists won’t operate because of my heart condition.”

She then describes the impact of suffering from ME, and explains that she can only manage to do tasks for just two or three hours a day. 

Susan had a stent fitted after her heart attacks and spent most of her time bedbound, largely due to also having ME.

An operation to remove part of her bowel meant she needed help to go to the toilet. She also needed help with her personal care, such as showering and with shopping, as she struggled to walk. But in late 2015, the Conservatives scrapped DLA and replaced it with PIP. Anyone 65 or older on April 8, 2013 still got DLA.

Susan’s daughter, Hayley Storrow, said: “It’s so sad. If she was born a week earlier she may have still been alive today.”

Susan’s PIP assessor had somehow erroneously decided that she could wash and bathe unaided, go to the loo and walk over 200 metres. Shockingly, this type of “error” and gross inaccuracy is very commonplace in the reports produced when disabled people are assessed for their lifeline support. In fact, earlier this year, the Labour party, the Green party and the Liberal Democrats called for the government to act on claims of widespread dishonesty by the medical professionals paid to compile benefits assessment reports, following a two-month investigation by Disability News Service.

Susan added in her letter that she would be virtually housebound without her Motability vehicle and her concluding comment is: “Thank you for reading this, with the greatest respect.”

She lost her Motability car last April because of the DWP’s decision not to award her PIP. Susan had sent a heartbreaking text to her daughter, Hayley, saying: “I’m never going to be able to see you again because they are taking the car.”

Susan is among thousands of disabled people who have lost their specialist Motability vehicles and wheelchairs because of cruel Conservative cuts and the restrictions to the eligibility criteria of PIP, and many more are likely to be affected. 

The PIP is supposed to help with the additional costs of being disabled, and in supporting disabled people in maintaining their independence and dignity, but many people are being denied the benefit because they are not assessed properly, and because the eligibility criteria have been made increasingly restrictive.

This means people previously eligible for the mobility component of DLA lose their cars and wheelchairs once they have been reassessed for the new PIP, if they don’t qualify for the mobility component. For many disabled people, this is a massive blow which impacts on their ability to remain independent, take part in their communities or get and keep a job. PIP is not means tested, so disabled people in work may claim it to help with additional support and extra costs. Many people losing their Motability vehicle will no longer be able to work.

Susan had asked for a review of the DWP decision following her first appeal. On 18 May last year, a letter arrived at her warden-assisted flat to tell her that the PIP award had been turned down yet again.

She was found dead the following morning and despite the letter and papers left out on the dresser, remarkably, a coroner said in October that she “had not taken her own life as there was no suicide note”, ruling it was a “drugs-related death”.

However, her daughter, Hayley, said: “I believe her unsent letter was her suicide note.”

It’s highly unlikely that an accidental overdose would have somehow prompted Susan to include a Do Not Resuscitate note with her letter and the bundle of DWP paperwork, too.

Do Not Resuscitate (DNR) orders are basically notes kept in a patient’s file that they do not want to be resuscitated should their heart stop. The medical establishment views DNR orders as the patient’s choice, though they do request that those considering DNR orders to discuss it with their family members. DNR orders may be requested by patients for a variety of reasons, all of them designed to keep the patient from suffering further. However, DNR laws do not take into account the situation of mentally ill patients framing a DNR order as a preparation for suicide.

The fact that Susan left the DNR note out with her letter and bundle of DWP documents indicates that her overdose was not accidental.

The Coroner’s verdict

By the end of 2015 it had emerged that the UK had experienced the largest annual spike in mortality rates for nearly 50 years.

Much media coverage seems to avoid reporting suicide as a response to structural conditions, and instead tends to emphasise suicide as an outcome of “mental illness” – as an individual act, rather than a problem that is influenced by socioeconomic and political conditions. The government has attempted to reconfigure wider social and economic problems as psychological problems, which has pushed highly politicised individual clinical and state therapeutic interventions – embodied in a rise of the mass provision of cognitive behavioural therapy and mandatory “attitude adjustment” classes for welfare recipients in the UK. This approach reflects political ideology and prejudices, rather than tackling the bigger issues of social inequality, poverty, lack of opportunity and an extremely punitive welfare regime. All of which are largely shaped by government policies.

Earlier this year, the Samaritans pubished their report Dying from Inequality, which clearly recognised rising socioeconomic inequality with a higher risk of suicide. The charity called on the government to direct support to those with unstable employment, insecure housing, low income or in areas of socioeconomic deprivation.

Mary Hassell, the senior coroner for inner North London, wrote directly to the DWP in 2015, stating that the suicide of Michael O’Sullivan, a disabled man who hanged himself, had been a direct result of being ruled “fit to work.

The coroner’s verdict of Michael O’Sullivan’s suicide is widely seen as ground-breaking by disability rights campaigners and groups like Disabled People Against Cuts (DPAC) because the DWP, the media and charities usually frame suicide as “complex” with no single cause, which means suicide has rarely been directly linked to the austerity programme, nor have government policies more generally been seen as directly responsible for suicides. 

Suicide is a significant social problem. Over 800,000 people commit suicide every year. Many of these can be quite properly understood as “economic suicides” because they take place against a backdrop of structural adjustment policies and rampant neoliberal market-led reforms. A counter discourse to the government tendency of psychologising socioeconomic conditions, making them the responsibility of individuals, rather than government and wider society, is of course crucial.

Technically, a coroner makes a finding of fact at the end of an Inquest. The coroner cannot attribute blame to any individual and cannot imply a criminal or civil liability, by law. The Coroner must use the evidence heard to decide who the deceased person was, where they died, when they died, and what the cause of their death was. Commonly, the “finding of fact” is referred to as a verdict or conclusion. A conclusion of suicide is decided where the evidence indicates a person has voluntarily acted to destroy his or her life in an intentional way. Inquest verdicts of Suicide (and Unlawful Killing) must be decided “beyond reasonable doubt”. Other causes of death may be decided on “a balance of probability”.

However, there is evidence to suggest that suicides are being under-reported because of the change in Coroner’s statutory regulations and guidelines, in 2013. Interestingly, contrary to the current trend in health and safety inquests, the Ministry of Justice guidance tells coroners that, wherever possible, short-form conclusions should be delivered, rather than the more detailed narrative conclusion.

Furthermore, open conclusions are discouraged, to be used only as a “last resort”. Concerns have been raised about the government’s new short-form conclusions and some organisations, including the Royal College of Psychiatrists, have asked the government to give due consideration to changing the standard of proof required for suicide verdicts. The 2013 reforms also enable the government to suspend an independent inquest into any death in favour of an inquiry, which under the Inquiries Act 2005 can be now be held in secret. 

The House of Commons Health Committee Suicide prevention: interim report Fourth Report of Session 2016–17 says: “Our evidence suggests the need for a more rapid provisional notification of suicide at the time when a suspected death by suicide occurs. We recommend that the Government take action to improve consistency between coroners and to make routine the use of provisional notifications of suicide. Furthermore, we recommend that the standard of proof for conclusions of death by suicide should be changed to the balance of probabilities rather than beyond reasonable doubt.” 

Rule 43 of the Coroners Rules (1984) states that if the Coroner is of the opinion that a death could have been prevented if different action had been taken by a particular person or organisation, he/she may make a recommendation for change. Also, the scope of the coroner’s investigation must be widened to include an investigation of the broad circumstances of the death, including events leading up to the death in question, where this wider investigation is necessary to ensure compliance with Article 2 of the European Convention on Human Rights (right to life). The positive duty to protect life implies a duty to investigate unnatural deaths, including but not confined to deaths in which state agents may be implicated.

Hayley has accused the government of having blood on their hands. She said: “People are living in poverty or considering suicide because of these benefits changes. My Mum won’t be the last to die.”

A DWP spokeswoman said: “Our thoughts are with Mrs Roberts’ family but there is no evidence to suggest any link between her death and her benefit claim.”

There is no evidence to suggest it isn’t, either, without further investigation, which so far, the government have refused to do. There is an established correlation between disability benefit assessments and increased mental health problems, distress and exacerbations of physical illness symptoms, too. While correlation isn’t necessarily the same thing as causation, it quite often implies a causal link, which may only be ruled out following further investigation, rather than political denial.

The DWP has quietly carried out investigations into 60 cases where benefit claimants are said to have taken their own lives. Labour MP Diana Johnson said the figures cast doubt on claims that there is no link between suicide and welfare re-assessments, with the DWP carrying out the internal reviews over the last five years. 

Johnson said: “Ministers have repeatedly claimed there to be no link between suicide and welfare re-assessment whenever figures have come to light.

“This parliamentary answer to me blows this claim out of the water.

“If there was no link, there wouldn’t have been 60 reviews of suicides in the past five years.

“I am appalled that these figures have remained unpublished for so long.”

A written parliamentary question from the Hull North MP revealed that the DWP carried out 15 internal reviews into suicides or alleged suicides of so-called DWP “clients” in 2012/13 alone.

“Families who’ve been left in the dark need to know everything the DWP knows about these cases,” Johnson said.

“Most importantly, we need a welfare system that supports, rather than victimises, the poorest and most vulnerable in our society.”

Susan’s daughter, Hayley said: “When my brother went to mum’s flat after she died, he found 37p in her purse. Even with DLA she was living day to day, scraping by. She was found dead with the PIP refusal letter placed strategically on a dresser.

“She was a poorly woman and this ­decision tipped her over the edge – she was in a desperate situation. I feel if it wasn’t for PIP and the Tory Government, my mum would still be alive. 

“They failed her like they have failed thousands.”

Susan wrote the 11-page letter criticising the decision and outlining her circumstances but as the DWP turned down her initial appeal within six days, she did not have time to send it. 

Hayley said: “I just want Theresa May to know that her rules and regime are killing the most vulnerable people in society.

“With the election coming up, it is so vital that things change.

“I feel any vote for the Tories is going to lead to more deaths.”

—

 

If you are experiencing distress and feel suicidal, please don’t suffer in silence. The Samaritans have launched a free telephone national helpline number, 116 123. 

People who are going through a difficult time can access the service round the clock, every single day of the year.

This number is free to call from both landlines and mobiles, including pay-as-you-go mobiles. You do not need to have any credit or call allowance on your plan to call 116 123.

 

Related

Government guidelines for PIP assessment: a political redefinition of the word ‘objective’

Government subverts judicial process and abandons promise on mental health ‘parity of esteem’ to strip people of PIP entitlement

New discriminatory regulations for PIP come into effect today

 

I don’t make any money from my work. I am disabled because of illness and have a very limited income. The budget didn’t do me any favours at all.

But you can help by making a donation to help me continue to research and write informative, insightful and independent articles, and to provide support to others. The smallest amount is much appreciated – thank you.

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Thousands of disabled people have lost their specialist Motability vehicles because of Conservative benefit cuts and many more are likely to be affected

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In 2012, Esther McVey, then the Minister for people with disabilities, as good as admitted there are targets to reduce or remove eligibility for the new disability benefit Personal Independent Payment (PIP), which was to replace Disability Living Allowance. How else could she know in advance of people’s reassessment that “330,000 of claimants are expected to either lose their benefit altogether or see their payments reduced“ as she had informed the House of Commons?

This was a clear indication that the new assessment framework was designed to cut support for disabled people. A recent review led the government to conclude that PIP doesn’t currently fulfil the original policy intent, which was to cut costs and “target” the benefit to “those with the greatest need.”

That basically meant a narrowing of eligibility criteria for people formerly claiming Disability Living Allowance, increasing the number of reassessments required, and limiting the number of successful claims. The government have used the review to attempt to justify further restrictions to PIP eligibility, aimed at cutting support for people who require aids to meet fundamental needs such as preparing food, dressing, basic and essential personal care and managing incontinence. “Greatest need” has become an ever-shrinking category under Conservative austerity measures. 

McVey also said that around 200 disabled people in every parliamentary constituency were likely to lose their Motability vehicle when she changed the qualifying walking distance limit from 50 metres to 20-metres. 

And she pointed out that one of the Department for Transport’s own publications, Inclusive Mobility, recommends that “seating should be provided on pedestrian routes at intervals of no more than 50 metres, and that parking spaces for blue badge holders should preferably be provided within 50 metres of the facilities they serve”.

The Motability Scheme helped around 650,000 disabled people to lease specialist cars, wheelchairs and scooters. Anyone on the highest level of the Disability Living Allowance (DLA) was entitled to join the scheme which also helped to pay for expensive adaptations. Motability provides financial help (grants) to disabled people who would not otherwise be able to afford the vehicle or adaptations they need, and the charity undertakes a range of fundraising activities to contribute to the provision of financial help to those Scheme customers whose allowance does not cover the cost of the mobility solution that they need.

Last year, Motability revealed that around 100 disabled people claiming PIP are losing their crucial vehicle benefit every week.

According to Motability, who lease specialised cars and powered wheelchairs to disabled people, 3,000 out of 8,000 of their customers who have so far been reassessed for PIP, who were previously claiming the Disability Living Allowance, have lost their eligibility for the scheme and have therefore had to give up their vehicles.

Motability raised concerns that the government reforms to DLA would affect many more. It has.

Nearly 14,000 disabled people have had their mobility vehicle confiscated after the changes to benefit assessment, which are carried out by private companies. Many more, yet to be reassessed, are also likely to lose their specialised vehicles.

Under the new PIP rules thousands more people who rely on disability allowance to keep their independence are set to lose their vehicles. Many had been adapted to meet their owners’ needs and many campaigners warn that it will lead to a devastating loss of independence for disabled people.

A total of 45% or 13,900 people, were deemed as not needing the higher rate of PIP, and therefore lost their vehicles after reassessment. And out of the 31,200 people who were once on the highest rate of DLA who have been reassessed, just 55%, or 17,300 – have kept their car.

Given that many Motability vehicles are specially adapted to meet the highly individual needs of each person, I wonder what happens to all of those vehicles that are lost under the new restricted benefit eligibility criteria.

Around 51,200 disabled people have joined the Motability scheme using their PIP. Around 360,000 more people will undergo PIP reassessments and that will include “indefinite” or “lifetime” awards under the original DLA support.

Perhaps the government expect that severely and chronically ill people will miraculously recover, their progressive illness will stop progressing, maybe people will grow new limbs, find cures of their own where medical professionals and drug companies have failed and battle their “choice” of disability alone.

Being disabled is very expensive. The charity Scope has calculated that disabled people pay a huge financial penalty over and above the everyday living costs faced by the typical able-bodied person – on average £550 per month. One in ten pay more than £1000 a month over the odds.

Expenses range from door-to-door taxis to get around, extra heating costs, pricey specialist items like wheelchairs, hoists, or stair lifts. There may be extra laundry costs, continence aids, special dietary requirements, a need for home help and meals on wheels. Some disabilities place more wear and tear on shoes and clothing, some people need suitable kinds of footwear. Non-prescription medical items are also an additional cost. These are just a few examples of extra expenses. There are many more that most able-bodied people wouldn’t ever need to think of.

Liz Sayce, chief executive of Disability Rights UK, said: “Being disabled costs money.

The Personal Independence Payment is supposed to help with those costs, but many people are being denied the benefit because they are not assessed properly. Sometimes that means people lose their cars; a massive blow which impacts on their ability to remain independent, take part in their communities or get and keep a job.”

Recent research revealed that of all the appeals related to PIP, 60% of tribunals have ruled in the claimant’s favour.

Motability provides a support package, including a £2,000 grant, to anyone forced to leave the scheme following a PIP reassessment.

The charity added: “This helps individuals to remain mobile, in many cases by purchasing a used car. Motability has already provided some £16m in support through this transitional package.”

The Conservative claim that “Government is committed to supporting the most vulnerable” doesn’t stand up to scrutiny, given the Conservative policy record, including cruelly scrapping the Independent Living Fund, which has had a hugely negative impact on those trying their best to lead independent and dignified lives, and the Access To Work funding has been severely cut, this is also a fund that helps people and employers to cover the extra living costs arising due to disabilities that might present barriers to work. 

Mr Duncan Smith said at the Conservative conference last year that many sick and disabled people “wanted to work” and that the Government should give them “support” to find jobs and make sure the welfare system encouraged them to get jobs. I’m wondering what the word “support” actually means to Conservatives, because there’s every indication that over the past five years, there has only been a withdrawal of essential support and lifeline benefits from those who need them the most.

Article 19 of the United Nations Convention on the rights of persons with disabilities states that persons with disabilities have access to a range of in-home, residential and other community support services, including personal assistance necessary to support living and inclusion in the community, and to prevent isolation or segregation from the community. Article 20 states that Parties shall take effective measures to ensure personal mobility with the greatest possible independence for persons with disabilities, including by:

a) Facilitating the personal mobility of persons with disabilities in the manner and at the time of their choice, and at affordable cost;

b) Facilitating access by persons with disabilities to quality mobility aids, devices, assistive technologies and forms of live assistance and intermediaries, including by making them available at affordable cost;

c) Providing training in mobility skills to persons with disabilities and to specialist staff working with persons with disabilities;

d) Encouraging entities that produce mobility aids, devices and assistive technologies to take into account all aspects of mobility for persons with disabilities.

Article 28 requires that States Parties recognise the right of persons with disabilities to an adequate standard of living for themselves and their families, including adequate food, clothing and housing, and to the continuous improvement of living conditions, and should take appropriate steps to safeguard and promote the realisation of these rights without discrimination on the basis of disability.

It’s difficult to see how the government’s cuts to lifeline disability benefits can possibly be consistent with their obligations to uphold human rights law. 

 

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