Tag: PIP

A disabled man with an inoperable brain tumour has been left without social security support

A man who has an inoperable brain tumour has condemned the government after his benefit support was stopped, leaving both his partner and himself with just £5 a week to feed themselves.

Karl Riley says that he’s been living below the bread line since his Employment and Support Allowance (ESA) and housing benefit were taken away three months ago when he moved in with his partner, whose income is just a few hundred pounds a month.

Karl, who is 32, says that he has a tumour that is embedded in his brain stem. This has caused him to suffer severe neurological symptoms, such as permanent limited mobility, double vision, memory loss, confusion, extreme anxiety, depression, nausea, insomnia, tinnitus and facial paralysis. 

Despite his health problems, Karl manages a few hours of self-employed work each week. He manages a band part-time, but isn’t capable of working full-time. He says he risks losing his house now that his benefits have  been stopped. 

Karl has also been waiting seven months for NHS physiotherapy treatment. 

He told i News: “I feel like I’m getting no help from either the government or the NHS. My partner and I can’t feed ourselves and pay other living expenses on just £5 a week. Who can survive on that? I understand now why so many people are going to food banks. This government leaves people to starve.”

Karl found out by accident about his non-cancerous tumour when he had a brain scan as part of a medical trial in 2012. At the time he had no symptoms and he was told that doctors would take a ‘wait and see’ approach.

He continued to work for nearly five years but early last year took a turn for the worse, becoming symptomatic. A scan showed the lump had grown to four times its original size. “I was fine at first. They said it wasn’t appearing to grow much and I carried on managing my five bands.” he explained. “But then the neurological symptoms started.” 

Karl had emergency brain surgery last March to drain a build up of fluid, followed by a second operation in July, when doctors told him the tumour was too embedded in his brain, making it inoperable. 

Karl said: “I was bad after the second operation. It caused me a lot more problems and I had to relearn how to walk.” He then had to undergo six weeks of radiotherapy in a bid to reduce the mass, and says he was vomiting every day and continues to feel the side-effects. 

Karl, who then lived with his partner Samantha Neale, 27, had some savings to fall back on at the time, but when they ran out of money, each of them were forced to move back  with their parents.

Karl had been struggling with his mobility. So in December, he made a claim for ESA. He was awarded £73.10 a week, which is the Support Group level of award, for those who cannot work because of illness or disability, plus he was awarded a basic award of £54 a week when he claimed Personal Independence Payment (PIP), which replaces Disability Living Allowance. Then in March, Karl and Samantha decided to live together again, renting the cheapest place they could find for £425 a month. However, Samantha became ill herself and was unable to work.  She currently receives statutory sick pay.

Karl said: “We wanted to live together again, I was stuck in my parents’ tiny box room which wasn’t ideal for me with mobility problems. My partner is essentially my carer, and she’s had a lot of problems in the past, then there was my illness on top of them and she just couldn’t cope anymore.” 

Karl had declared the move as a change of circumstances, and says the that government asked to look at Samantha’s payslips and took one that showed a higher than normal payment to be their regular income. 

Karl explained: “Samantha is getting £380 a month in sick pay, but for one month in May she was paid nearly £600 because her April payment was under at £280 due to a processing problem.

“But despite explaining this the benefits people decided her regular income is £600. Our council tax reduction has stopped too and we can’t claim housing benefit.” So Samantha’s back payment – money she was owed – was taken as her income as well.

Once Karl’s ESA was stopped, he was told to claim working tax credits, but his award didn’t include the disability element.

This means that he now has to pay for his rent in full and has no council tax reduction. Karl says that after paying their rent and bills, there’s now so little left that he’s had to resort to setting up a GoFundMe appeal, because he feels so desperate. 

“It’s disgraceful, it feels like begging, but I had no other option or we will lose the roof over our heads,” he said.

I’ve worked hard all my life, and I can’t help having a brain tumour. The government also make it all so complicated with form after form to fill in, which is hard because I suffer short-term memory problems. It feels like a slap in the face.

He added: “I would love to be able to work more but I desperately need physiotherapy and occupational therapy. I don’t blame Breightmet Health Centre for that, I blame the government for the cuts and leaving NHS resources so stretched.” (Breightmet is an area of Bolton.)

A Department for Work and Pensions spokesperson said: “We’re committed to ensuring that people with health conditions get the support they’re entitled to. Decisions for ESA are made following consideration of all the information provided by the claimant, including supporting evidence from their GP or medical specialist. Anyone who is unhappy with a decision can appeal.

“People with long-term health conditions may also be eligible for support through other benefits such as PIP.” 

It takes months to get a tribunal date, and before people can appeal, they have to go through a mandatory review first, where the government decides whether their original decision was correct. The mandatory review has no time limit, and an average of six weeks is usual for people to wait for the second decision.

Meanwhile, people are left without an adequate income to meet their basic living needs, and an average of nine months wait for their appeal to be heard.

To donate to Karl Riley’s fund, click here.


I don’t make any money from my work. I’m disabled through illness and on a very low income. But you can make a donation to help me continue to research and write free, informative, insightful and independent articles, and to provide support to others. I co-run a group that supports disabled and ill people going through ESA and PIP claims, assessments and appeals.

Any donation is very much appreciated – thank you.

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I’m a disabled person and Sarah Newton is an outrageous, gaslighting liar

Last year I wrote an article about how the social security system in the UK has been re-structured around “ordeals”, which were introduced by the Conservative government in order to discipline and “disincentivise” citizens from claiming welfare support.  The government’s aim is to ‘deter’ a ‘culture of dependency’ (a debunked myth) by undermining any sense of security people may have of fulfilling their most basic needs.  Welfare support is extremely conditional, precarious and punitive, because it is founded on traditional and appalling Conservative prejudices about poor people. 

Ordeals are intrinsic to a system of punishment that the draconian Conservatives claim will “change the behaviours” of underpaid, unemployed and disabled people. By creating a hostile environment, the government are somehow claiming that it’s possible to simply punish people out of having basic needs.  If employment were genuinely ‘the route out of poverty’, as the government claim, why is it that most people who need social security support are in work?

Then there are the additional concerns about how the government treats those citizens who are too ill to work. The Conservatives simply refuse to believe them or their doctors.

Yesterday in parliament, the Shadow Disabilities Minister Marsha De Cordova again raised the fact that the United Nations (UN) had found “grave and systematic violations of disabled people’s rights” in the UK.

The Labour MP added yesterday in parliament: “This government’s policies have created a hostile environment causing grave violations on disabled people.”

The entire assessment process has established a system marked by assuming disabled people are somehow faking their disability or illness. It’s a case of “remove people’s support first, they can appeal later”. Once they have got through mandatory review and struggling without any income, that is. (To date, two-thirds of appeals are won by claimants. This is despite the legal aid cuts, which mean disabled people appealing their rejection for support are denied any legal support in a staggering 99% of cases.)

Outrageously, Newton said it’s “not true” that disabled people face a hostile environment.” She also asked the opposition not to say “things” that they “know are not true”.
But disabled people in the UK know that it IS true.


Basically Newton was inviting the Labour party to collaborate in gaslighting disabled people, as well as attempting to stifle genuine concerns, democratic dialogue and avoid any democratic accountability whatsoever. Absolutely shameful, authoritarian behaviour.

The United Nations (UN) and the Equalities and Human Rights Commission have already verified the truth of these statements, presented by Labour shadow ministers, disability charities and disabled people. 

However, the Conservatives have a track record of denying empirical findings that don’t match their ideological expectations. They simply deny and dismiss any criticism of their prejudiced and discriminatory policies. Damian Green, the Work and Pensions Secretary at the time of the UN inquiry report, famously claimed that cuts to support for disabled people did “not necessarily mean worse outcomes.” 

If the Conservatives genuinely believed that were true, they wouldn’t have such a problem in ensuring very wealthy people paid a fair amount of tax more generally. Apparently, money matters only to the rich. Cuts to their income must be avoided at all costs. And it does cost some of society’s most marginalised citizens, leaving us vulnerable. 

Those in the work-related Employment and Support Allowance (ESA) group have already seen their support brutally cut to fund tax cuts for the wealthy. Personal Independent Payment (PIP) was introduced to cut costs, too.

The fact that disabled people are also dying after losing their benefits is continually ignored, often dismissed by the government as ‘anecdotal evidence’, which does not ‘demonstrate a ‘causal link’ between increased, preventable mortality and government policy”. 

My own experiences of the Conservatives hostile environment

As a disabled person who has gone through three ESA assessments, and more recently, a PIP assessment, a mandatory review and tribunal, I can verify that the Conservatives’ policies have created a hostile and harmful environment for disabled people. When I went through the ESA assessment in 2011, I was already gravely ill with a severe lupus flare. I was forced to leave a job I loved in 2010.

By then I had worked with the illness as long as I possibly could. I became ill with lupus in 1998. The illness is chronic, progressive and is characterised by periods of acute illness, followed by periods of relative remission. Each flare generally imposes an increasing amount of damage to joints, nerves, tendons, organs and blood cells, as the disease progresses, causing myriad symptoms that vary over time, and from person to person. 

Unbelievably, despite being so ill, I scored zero points at the assessment and the stress of having to fight for a means to live exacerbated my illness. I won an appeal nine months later. In the meantime I was placed on a work programme that I couldn’t possibly undertake. The disability advisor I saw at the job centre told me she could see I was unfit for work.

Just three months following the appeal, I was told I must attend another assessment. By this time I was so poorly that I collapsed at the interview. The Atos doctor told me I should never have been sent for another assessment. I was on chemotherapy treatment at the time, which ought to have exempted me, as should the tribunal outcome just a couple of months previously. The initial Atos report, presented to the court, was clearly about someone else’s life and conditions. The tribunal said that working would place me at unacceptable risk. 

I also ensured the assessment was recorded the second time, so little was my trust of the fairness and rationality of the process. Or the honesty and integrity of Atos’s ‘health care professionals’. At the second assessment, I saw a doctor, who sent me home in a taxi, Atos actually paid for it. He also recommended that I was placed in the Support Group.

It was two years before my treatment stopped the aggressive advance of my illness, which also leaves a wake of progressive damage to bones, joints, tendons, nerves, blood cells, major organs and my immune system – causing further disability. My rheumatologist is sure the severe stress of assessment and appeal, coupled with the financial hardship I experienced, exacerbated my flare. By 2013 I was still very frail, and weighed less than seven stones, despite feeling less acutely ill.

The experience was so distressing for me that I could not face going through a PIP assessment, despite the fact that I needed the additional support. I put off claiming until last year, when I needed aids and appliances in my home just to manage day-to-day tasks like taking a shower and cooking. The occupational therapist from my local council helped me with my claim. By this time I desperately needed the additional support.

The PIP assessment was dehumanising and degrading and the ‘examination’ included movements that left me in a lot of severe pain, reducing my mobility further, substantially. Some of my joints were badly swollen by the evening, following my appointment, including both shoulders and knees. I was asked to do movements I wasn’t familiar with, and it isn’t until you try them that you find you cannot actually bend or reach that way. The movements were also done in quick succession. I was trembling with the effort and complained I was in pain. When I refused to do a squat, I was asked why. I explained that I simply couldn’t do it. I have arthritis in both hips and lower spine, both of my wrists and shoulders won’t take any weight and had I fallen backwards, I risked breaking a wrist, as I also have early onset osteoporosis because of my illness.

People should not be leaving assessments in a worse condition than when they arrived for them.

I made a formal complaint, but was fobbed off by the person carrying out the investigation, who simply concluded that as he ‘wasn’t in the room at the time’ of the assessment and so could neither verify nor negate my ‘allegations’. It took him four pages to say that.

I was just one point short of an enhanced PIP award. The reasoning on the assessment report for denying me a point for cognitive difficulties was that I had a degree (1996, Master’s in 2007), worked as a social worker (until 2010, when I became too ill to work) and a driving licence in 2003. I have been unable to drive since 2005 because of flicker induced seizures. Clearly the idea that an illness that prevents me from continuing in work, which is also well-known for causing neurological illness, has led to increasing cognitive difficulties since 2009 isn’t acceptable to PIP assessors, who wanted to keep my award as low as possible.

The DWP didn’t even bother writing to let me know the outcome of my mandatory review. Throughout the process, from the first ESA assessment to the last PIP assessment, I was treated as though I was somehow a burden, rather than being supported.

Newton claimed yesterday that the opposition’s comments are “dangerous”and “deter” people who need support from claiming it. What utter tosh. It is government policies that are dangerous, and that have created a series of ordeals in the assessment process, designed to weight the assessments towards permitting the DWP to refuse people support.

I needed PIP in 2011, but my experience of ESA assessment was so devastating that I was deterred from claiming PIP until I was absolutely desperate, last year. I simply could not face risking my health even further with another assessment, unless I absolutely had no choice. That last assessment also caused an exacerbation of my illness and injury to my already damaged joints and tendons. 

How dare Newton tell such hard faced, deplorable lies.

She went on to say: “We have very strong protections for people with disabilities in our country.”

Newton even had the cheek to cite Labour’s Equality Act as a ‘protection’ for disabled people, as if it was the Conservatives who designed this policy. This is the same Act that this government has violated over and over because of their welfare ‘reforms’ and austerity programme.

Those protections were brought about by the last Labour government, which also included the Human Rights Act, as well as Labour signing the UK up to the Convention on the Rights of Persons with Disabilities (UNCRPD) – an international human rights treaty intended to protect the rights and dignity of persons with disabilities.

The established human rights and equality frameworks have been methodically ignored by this government, who decided to target disabled people with a significantly disproportionate burden of their ideological austerity programme. The UN found that the Conservatives’ treatment of disabled people gravely and systematically violates our human rights. The evidence gathered by the UN came from disabled people’s accounts (including mine) and those of disability organisations and charities.

This is a government that has systematically marginalised disabled people economically  socially and politically, sidestepping human rights and equality legal frameworks. Apparently the government doesn’t regard democratic accountability to disabled people as particularly important. Instead, ministers simply lie and deny other people’s experiences and accounts. 

Newton also shamefully suggested people losing their motability cars should complain to the Motability charity – not the government. It’s not the charity that are creating a hostile environmen for disabled people, carrying out assessments that are absolutely unfit for purpose. This government simply refuse to accept any responsibility for the consequences of their own actions. History has taught us that such right wing authoritarian governments are very, very dangerous.

How dare this minister deny and dismiss the accounts of disabled people – those directly affected by her government’s draconian policies. How dare she call other people ‘liars’ while she stood there lying in parliament. She seems to have forgotten that disabled people have the same democratic right as other groups to hold a dialogue with the government, but instead we have patronising and vindictive ministers telling us their punitive and authoritarian policies aren’t causing us any harm or distress. We say they are and we are told by this manipulative, gaslighting liar that it is we that are ‘lying’. 

Newton presented us with despicable and manipulative gaslighting tactics used by bullies, psychopaths and despots. When Newton claims that the opposition are telling ‘untruths’, she is also accusing those of us who have suffered because of her governments wretched and punitive policies. She then goes on with hard faced cheek to ‘condemn the condemners’*(see below for outline of techniques of neutralisation):

I honestly ask all members opposite, please do not use this language of hostile environment. It is simply not the case.

“And the very people that need all of our support are put off from seeking it and coming forward.

“Really, I would ask them to stop saying things which they know are not true.”

The Conservatives talk a lot about “evidence-based policy”, but they don’t walk the talk. An overwhelming weight of evidence has highlighted the cruel, draconian effects of the Tories’ social polices to date. The government have simply chosen to deny and ignore it. 

Clearly the government is committed to trying it on by paying people (from their OWN contributions) as little as they can possibly get away with from the public fund. Perish the thought that public paying taxes towards public services may actually want to use those public services at some point in their lives. Yet the government irrationally insists that the cuts are “to provide tax payers with value for money.”

There IS NO discrete group of tax payers that never use public services, who are simply paying for “other peoples'” support. Everyone pays tax, including those claiming welfare support. Most people claiming support have worked, many needing support are actually IN work. Furthermore, as employment has become increasingly precarious, many move in and out of employment, through no fault of their own. 

The “value for the tax payer” spin is simply a divisive strategy – a political game of “us and them” that is used to justify punitive policies which target some groups, while the deliberate scapegoating of those groups serves to de-empathise the public to their loss of support, increasing vulnerability and distress. 

Deliberately cutting money from disabled peoples’ crucial lifeline support can hardly be described as providing “value for money” nor is it “fair” and “supportive”. This consistent response and denial from a government of liars indicates quite clearly that the cuts were always intentional on the part of the government.

The gaslighting, denial and dismissal by Newton and her Conservative colleagues indicates a deliberately prejudiced, vicious attack on a significant minority of the population, which this Orwellian government clearly have absolutely no intention of stopping or putting right any time soon.


* Techniques of neutralisation: 

Used to switch off the conscience when someone plans or has done something to cause harm to others. 

The idea of techniques of neutralisation was first proposed by David Matza and Gresham Sykes during their work on Edwin Sutherland’s Differential Association in the 1950s. Matza and Sykes were working on juvenile delinquency, they theorised that the same techniques could be found throughout society and published their ideas in Delinquency and Drift, 1964.

They identified the following psychological techniques by which, they believed, delinquents justified their illegitimate actions, and Alexander Alverez further identified these methods used at a socio-political level in Nazi Germany to “justify” the Holocaust:

1. Denial of responsibility. The offender(s) will propose that they were victims of circumstance or were forced into situations beyond their control.

2. Denial of harm and injury. The offender insists that their actions did not cause any harm or damage.

3. Denial of the victim. The offender believes that the victim deserved whatever action the offender committed. Or they may claim that there isn’t a victim.

4. Condemnation of the condemners. The offenders maintain that those who condemn their offence are doing so purely out of spite, ‘scaremongering’ or they are shifting the blame from themselves unfairly. 

5. Appeal to higher loyalties. The offender suggests that his or her offence was for the ‘greater good’, with long term consequences that would justify their actions, such as protection of a social group/nation, or benefits to the economy/ social group/nation.

6. Disengagement and Denial of Humanity is a category that Alverez
added to the techniques formulated by Sykes and Matza because of its special relevance to the Holocaust. Nazi propaganda portrayed Jews and other non-Aryans as subhuman. A process of social division, scapegoating and dehumanisation was explicitly orchestrated by the government. This also very clearly parallels Gordon Allport’s work on explaining how prejudice arises, how it escalates, often advancing by almost inscrutable degrees, pushing at normative and moral boundaries until the unthinkable becomes tenable. This stage on the scale of social prejudice may ultimately result in genocide.

Any one of these six techniques may serve to encourage violence by neutralising the norms against prejudice and aggression to the extent that when they are all implemented together, as they apparently were under the Nazi regime, a society can seemingly forget its normative rules, moral values and laws in order to engage in wholesale prejudice, discrimination, exclusion of citizens, hatred and ultimately, in genocide.

In accusing citizens and the opposition of ‘scaremongering’, the Conservatives are denying responsibility for the consequences of their policies, denying harm, denying  distress; denying the victims and condemning the condemners.

Meanwhile, for many of us, the government’s approach to social security has become random, controlling and an unremitting, Orwellian trial. 

Read some of the accounts of other disabled people who have also faced the Conservative’s hostile environment and social security ordeals:

Fit for work assessment was trigger for suicide, coroner says

Man leaves coroner letter as he fears Work Capability Assessment will kill him

Jobcentre tells GP to stop issuing sick notes to patient assessed as ‘fit for work’ and he died

Cystic fibrosis sufferer refused PIP – the Conservative bureaucratic wall and systematic dismantling of social security

Man with diabetes had to have his leg amputated because of benefit sanctions

Benefits Assessor: How Long Are You Likely To Have Parkinson’s?

Please let’s help Peter to maintain his mobility and independence

Thousands of disabled people have already lost their specialist Motability vehicles because of Conservative PIP cuts and many more are likely to be affected.

Remembering the Victims of the Government’s Welfare “Reforms”  (This list needs to be updated).


I don’t make any money from my work. I am disabled because of illness  and have a very limited income. But you can help by making a donation to help me continue to research and write informative, insightful and independent articles, and to provide support to others. The smallest amount is much appreciated – thank you.

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Devastated mother whose children were murdered fears eviction due to cut benefit

Image result for pip esa inquiry

 

A mother of two children who were murdered by her husband says she fears being made homeless, after the heartless Department for Work and Pensions stopped her disability benefit support, despite being aware of the severe trauma she had experienced and the devastating impact it has had on her mental health.

June Martin, who has been diagnosed as suffering with post traumatic stress disorder (PTSD) and depression, was considered by the Department for Work and Pensions (DWP) to be ineligible for Personal Independence Payment (PIP), following an assessment by Independent Assessment Service – formerly known as Atos Healthcare.

June has challenged the accuracy and fairness of the PIP assessment process. She told the Sunday Post that the assessor only “wanted to know if I could spell ‘world’ backwards and hold my arms above my head.”

She said I’ve been treated like some kind of scrounger and put on trial, although I’ve done nothing wrong.

“My former husband, who murdered our children, doesn’t have to worry about keeping a roof over his head or where his next meal is coming from but now I do.

She added, tragically:I’ve been made to feel a burden on society. Maybe it would be better if I wasn’t here.”

On Saturday, May 3, 2008, June walked into her home in Buckhaven, Fife, and found the bodies of disabled Michelle and her little brother Ryan while their father, who had stabbed them 26 times, lay on his bed, pretending to be dead. June’s former husband, Rab Thomson, was found guilty of stabbing 25-year-old Michelle and 7-year-old Ryan and given a life sentence in 2008. 

However, despite her struggle to cope with the terrible trauma, the benefits assessment report describes her mental state examination as “unremarkable”.

She said: “I’m now terrified I will lose my rented flat because I can’t keep up the £35 a week I have to find to make up the difference to housing benefit.

“I must have moved over a dozen times because I haven’t been able to settle somewhere I feel safe.

“Just when I finally found a little peace and somewhere I can feel safe, I fear it’s all going to be taken from me now.

“I’ve tried far too many times to take my own life because I just feel there is nothing for me to live for and this has left me feeling like that again.”

MP Patricia Gibson described the case as “shocking” and said: “This is yet another example of the DWP letting down vulnerable people when they most need support. Those living with mental health challenges are poorly understood by DWP assessor and this has to change.”

Left bereft, extremely distressed and suicidal, June has struggled to rebuild her life. She has never recovered from her ordeal, which is absolutely understandable. She had been in receipt of £55.10 a week in disability benefits before being reassessed for PIP.

However, an independent tribunal has unbelievably upheld the DWP decision. 

A spokesperson said: “Whilst the tribunal accepts Ms Martin has mental health problems and balance problems, the nature and extent of the resulting limitations are insufficient to score the required number of points.

“As a result Ms Martin does not qualify for either component of Personal Independent Payment.”

That someone who has faced such a deeply traumatic event as the murder of her children has to then “score a required number of points” to be considered eligible for lifeline support indicates just how profoundly dehumanising and utterly unfit for purpose the disability benefit assessment process is.

June said “Neither the assessor or the tribunal last week seemed to want to know about the trauma I suffer daily reliving finding my children posed as if they were asleep in their beds, or pulling back the covers to find them stabbed to death,” she said.

“I’ve battled so very hard to try and go on, but I’ve had to accept I’ll never get over finding my babies murdered, their blood on the walls and over their toys and teddy bears.

“My disabilities are invisible. They cannot be tested by spelling a word backwards or holding my arms above my head.

“Questions were thrown at me, one after the other. I couldn’t think straight to answer them properly. I’m a mess. I don’t stand up well to questioning. I just blurt things out and I panic.

“I’d written on the official forms that my children were murdered and I found them, but I don’t remember being questioned about that or my inability to live anything like a normal life.”

June also said that the assessor and DWP failed to take into account how her mental health fluctuates from day to day.

June continued: “I don’t know from one day to the other how I will feel, sometimes from one hour to the other”, she said.

“I can get up and go to the supermarket for a loaf of bread one day, but if I hear a child crying it takes me back to the murder scene.

“A smell, a song, someone laughing like my Michelle used to laugh, brings it all back and I have to run away from it.”

A DWP spokesperson offered the usual meaningless and standardised platitudes, saying: “This is a sensitive and distressing set of circumstances and our thoughts remain with Ms Martin.

“We will continue to ensure Ms Martin is receiving all the benefits she is entitled to and gets the support she needs.”

The support that June needs is the reinstatement of her Personal Independence Payment, and an adequate level of support to meet her housing costs, not gaslighting from the DWP. 

We live in an age of ubiquitous measurement, where our health and eligibility for support is defined and decided by metric based judgments, and our behaviours and expectations are expected to conform to the government’s notion of an overarching competitive model of the market. In this horrifically cruel, impersonal and dehumanising neoliberal world, eligibility for support depends on whether you score enough points that measure arbitrary criteria of what the state thinks should be measured.

Can you say a “world” backwards? Can you touch your knees? Can you raise an arm? This framework of meaningless tick box criteria bears little resemblance to the many actions and decisions you have to make during your everyday life, and it doesn’t show anything of how someone copes or doesn’t cope. It doesn’t indicate if someone has a network of support, help from other agencies, or if they are completely isolated.

It tells us nothing of whether or not someone can consistently perform one of these prescribed and contradistinctive tasks at an assessment for lifeline support in real life. The more of these meaningless and detatched-from-everyday-living tasks you are perceived as able to perform, the less points you are awarded. If you fail to score enough points, you aren’t considered ‘eligible’ for support, regardless of how much you happen to need it. 

The accounts presented in disability assessment reports based on the rigid, inadequate point scoring system and the actual realities of disabled people’s lives are incommensurable.

The Commons Work and Pensions Committee said earlier this year that it had an “unprecedented” response when it asked members of the public to get in touch with their experiences of being assessed.

Some people said reports of their assessments included the results of physical examinations that hadn’t happened. Some reports left out crucial information provided during the interview, and some seemed to refer to entirely different people. Publishing their findings, the MPs said the number of ‘mistakes’ taking place, and the number of decisions eventually overturned on appeal, had created “a lack of trust in both benefits” and led to fears the system is deliberately rigged against claimants.

It is. The system is rigged to disallow social security awards to disabled people who need support.

Stephen Brown, head of North Ayrshire Council’s health and social care partnership, said: “The benefits system often fails to recognise the impact of trauma and its long-term debilitating nature. Our psychologists, psychiatrists and social workers have known this for years and much of their time is spent supporting people to rebuild their lives.”

To rebuild lives, we must first ensure people can meet the costs of their basic living needs – such as for food, fuel and keeping roof over their head.

 

Related

Please let’s help Peter to maintain his mobility and independence

The PIP & ESA inquiry report from the Work and Pensions Select Committee – main recommendations

Government guidelines for PIP assessment: a political redefinition of the word ‘objective’

Thousands of disabled people have already lost their specialist Motability vehicles because of Conservative PIP cuts and many more are likely to be affected.

PIP and the Tory monologue

Government plans further brutal cuts to disability support

Consultation as government seek to limit disabled people’s eligibility for Personal Independence Payment

Second Independent Review of Personal Independence Payment assessment

 


I don’t make any money from my work. I am disabled because of illness  and have a very limited income. But you can help by making a donation to help me continue to research and write informative, insightful and independent articles, and to provide support to others. The smallest amount is much appreciated – thank you.

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It’s time government ministers stopped lying about their attack on disabled people

Image result for centre for welfare reform simon duffy

Earlier this year, I wrote an article about the Universal Credit (UC) rules which will leave many disabled people who are new claimants, who experience a change in circumstances or a break in their claim, without their Disability Income Guarantee.

Those people who qualified for the support component of income-related Employment and Support Allowance and (ESA) are eligible for a disability premium (also called the Disability Income Guarantee.) However, as a result of the abolition of both the severe disability premium (SDP) and enhanced disability premium (EDP) under UC rules, according to the disability charity, Scopethe cut to the disability income guarantee will see disabled people lose as much as £395 a month.

Two disabled people decided to take the government to court over the brutal cuts to their income, which has caused them severe hardship.

Earlier this month, in a landmark judgment, the High Court ruled that the Department for Work and Pensions (DWP) unlawfully discriminated against two severely disabled men who both saw their benefits dramatically reduced when they claimed Universal Credit. 

Lawyers representing the men said the ruling showed that the new benefit system was “not working” for the disabled or other claimants, and urged the government to halt the roll-out and overhaul the system to meet peoples’ needs and not “condemn them to destitution”. The two claimants, known only as TP and AR, had both previously been in receipt of the Severe Disability Premium (SDP) and Enhanced Disability Premium (EDP), which were specifically aimed at ensuring the additional care and needs of severely disabled people living alone with no carer are met.

Both people were required to make a claim for universal credit when they moved into new local authorities where the controversial new benefit was being rolled out. According to both the men, they were advised by DWP staff that their benefit entitlement would not change. Yet despite repeated assurances from the government that “no one will experience a reduction in the benefit they are receiving at the point of migration to universal credit where circumstances remain the same”, both men saw an immediate drop in their income of around £178 a month when they were moved over to UC.

When they asked for the top up payments promised by the DWP, they were told that Government policy was that no such payments would be paid until July 2019 when managed migration is due to begin.

As both claimants testified to the court, the sudden drop of income had a devastating impact on them, both physically and psychologically. TP, a former City banker who suffers from a terminal illness, has been struggling to address his care needs, and AR, who suffers from severe mental health issues, has been unable to afford basic necessities.

Earlier this month, the DWP committed the government to ensuring that no severely disabled person in receipt of the SDP will be made to move onto universal credit until transitional protection is in place and also, made a commitment to compensate those like the claimants who have lost out.  

Despite this, following the judgment, the Secretary of State for Work and Pensions has sought permission to appeal, maintaining that there was “nothing unlawful” with the way the claimants were treated. 

Their lawyer, Tessa Gregory from the human rights team at Leigh Day, told the Court: “Nothing about either of the claimants’ disability or care needs changed, they were simply unfortunate enough to need to move local authorities into a Universal Credit full service area.”

The judge said the impact on the individuals was “clear”, and said the way they were transferred onto universal credit was “manifestly without reasonable foundation” and “failed to strike a fair balance”.

Following the ruling, Ms Gregory said: “This is the first legal test of the roll out of Universal Credit and the system has been found to be unlawfully discriminating against some of society’s most vulnerable. 

“Whilst we welcome the Government’s commitment to ensuring that no one in our client’s position will now be moved onto Universal Credit until top up payments are in place, it comes too late as it cannot make up for the months of suffering and grinding poverty our clients and many others like them have already had to endure.

“We call upon Esther McVey to compensate our clients and all those affected without any further delay, and urge her to focus on fixing Universal Credit rather than wasting more public funds appealing this court decision.

“Today’s decision shows again that Universal Credit is not delivering what was promised at the outset. It is not working. It’s not working for the disabled, it’s not working for parents, it’s not working for low-income and part-time employees and it’s not working for the self-employed.  

“The government needs to halt the rollout and completely overhaul the system to meet peoples’ needs, not condemn them to destitution. If this doesn’t happen further legal challenges will inevitably follow.

“Disability premiums are not a luxury. They play a crucial role in helping disabled people pay for essentials like food, clothing and bills. The needs of the people involved in this case haven’t changed, and yet they have lost more than £170 per month in support. This isn’t  fair.

Until the Government fully addresses these issues, it will unfairly penalise disabled people for moving over to universal credit.”

A DWP spokesperson said: “The court found in our favour on three of the four points raised by the claimant. We will be applying to appeal on the one point the court found against the Department. This government is committed to ensuring a strong system of support is in place for vulnerable people who are unable to work.”

Clearly the government is committed to trying it on by paying people as little as they can possibly get away with from the public fund. Deliberately cutting money from disabled peoples’ crucial lifeline support can hardly be described as “ensuring a strong system of support is in place”. This response indicates quite clearly that the cut was fully intentional on the part of the government.

The spokesperson added: “Last week, the Secretary of State announced that we will be providing greater support for severely disabled people as they move onto universal credit. And we have gone even further, by providing an additional payment to those who have already moved onto the benefit.”

Yes, because the cut has been ruled as discriminatory and unlawful, not because a choice was actually made to do so. Only the Conservatives could turn prejudice, discrimination and breaking the law into some kind of virtue.

Again this response indicates clearly that these were intended changes, and not merely  a consequence of administrative incompetence. There was not a shred of regret expressed by the government regarding the severe hardship these cuts have caused for disabled people. 

And this still leaves disabled people claiming the disability support component of Universal Credit for the first time without the Disability Income Guarantee. That is also discriminatory. 

The Department for Work and Pensions have claimed UC means that support is “focused on those who need it most”, but a government removing Severe Disability Premium and Enhanced Disability Premium, which is support designed to help severely disabled people who live without a carer – is pulling a basic safety net from citizens with the greatest needs. The premiums were also designed in part to address the problem of cumulative poverty for severely disabled people who cannot work, or who face disadvantage in the labour market because of additional needs and barriers. 

This cut will also potentially affect disabled lone parents who may rely on their benefit support to pay for support to shop, cook and wash, for example. The cut may mean that they will be forced to rely on their own children as carers.

Austerity has been carried disproportionately by disabled people

The UC system has made an estimated £11bn in savings, mainly through Treasury cuts to the original set level of universal credit rates – most notably through reductions to work allowances, which will save around £3bn, and the removal of £2bn in disability premium payments – but UC planning and delivery has also incurred £8.5bn in expenses.

Government statistics published last year show 47 per cent of people who were formerly receiving Disability Living Allowance (DLA) saw their support fall or stop altogether when they were reassessed for Personal Independent Payment (PIP).

Of a total of 947,000 claimants who were reassessed in the year up to October 2017, 22 per cent saw their support reduced, while a quarter were disallowed or withdrawn altogether — meaning 443,000 people will have had their claims reduced or removed.

However, the success rate for claimants when appealing Personal Independence Payments (PIP), for example, was 65% in 2016/17. The Mirror has recently reported that the rate of PIP appeal success has hit an all-time high of 71% for the first quarter of 2018.

Labour MP Rosie Duffield secured a debate (her first) which took place a couple of days ago (20 June) about the report by the UN committee on the Rights of Persons with Disabilities (UNCRPD). The report said successive UK governments had committed “grave” and “systematic” violations of disabled people’s human rights. The chair of the committee said the government had created a “human catastrophe” for disabled people. (You can read the full debate here).  

The debate addressed last autumn’s report on the UK’s implementation of UNCRPD, and the conclusion of the UN’s disability committee that the UK government should make more than 80 improvements to the ways its laws and policies affect disabled people’s human rights.

In a briefing prepared ahead of the debate, the Equality and Human Rights Commission  the other official and independent bodies responsible for monitoring the UK’s progress in implementing the convention – had called on the UK government to describe how it would “comprehensively address” the UN committee’s findings. However, the government has not made any commitment to implementing the committee’s recommendations.

During the debate, Labour MPs accused Sarah Newton, Minister of State for the Department for Work and Pensions, and the government, of making disabled people a “forgotten class”; of allowing the DWP to “endlessly mistreat” them, and of creating a “national scandal”.

Newton dismissed Labour’s comments, using techniques of neutralisation that I’ve written about before. In short, Newton used a tactic that the Conservatives have used many times before – an indignant and outraged denial. She actually accused the opposition of ‘scaremongering’ again, (and by default, she attempted to discredit disabled citizens’ accounts of their own experiences, which of course flies in the face of democratic accountability). 

The Conservatives are denying responsibility for the consequences of their policies, denying harm, denying the victims and condemning the condemners. 

In her attempt to defend her government’s appalling record on cuts to social security, she also told MPs that there had been “no freeze in the benefits that disabled people receive”.

But this is not true, a fact that has been repeatedly pointed out to Tory ministers and her party.

Although disability living allowance (DLA), personal independence payment (PIP) and the employment and support allowance (ESA) support group top-up are exempt from the benefits freeze – which is set to last to 2020 – there is no exemption for the main component of ESA and the top-up paid to those in the ESA work-related activity group, which continues to be frozen.

Newton claimed that the UN, opposition and again, by default, disabled citizens, were making “irresponsible” allegations. And the courts. Again, this is a technique of neutralisation called “condemning the condemners”, used to ‘switch off ‘someone’s conscience when they plan, or have done, something to cause harm to others. The technique may also be used to push at the normative and moral boundaries of groups and the wider public.  (*See below for a full outline of the techniques).

Newton also said that the government was “very disappointed” that the UNCRPD did not “take on board […] the evidence that the government gave them. They did not acknowledge the full range of support.” That’s because it isn’t there.

The UNCRPD report presented extensive, meticulous evidence with their thorough report, gathered from disabled people that have been affected by the welfare cuts, campaign groups, charities and research academics. It also condemned the UK government’s attempts to misrepresent the impact of policies through “unanswered questions”, “misused statistics”, and a “smoke screen of statements.” 

It isn’t ‘scaremongering’ to express concern about punitive policies that are targeted to reduce the income of social groups that are already struggling because of limited resources, nor is it much of an inferential leap to recognise that such punitive policies will have some adverse consequences. 

Political denial is oppressive – it serves to sustain and amplify a narrow, hegemonic political narrative, stifling pluralism and excluding marginalised social groups, excluding qualitative and first hand accounts of citizen’s experiences, discrediting and negating counternarratives; it sidesteps democratic accountability; stultifies essential public debate; obscures evidence and hides politically inconvenient, exigent truths. Denial of causality does not reduce the probability of it, especially in cases where a correlation has been well-established and evidenced. The government have no empirical evidence to verify their own claims that their punitive policies do not cause harm and distress.

Government policies are expressed political intentions regarding how our society is organised and governed. They have calculated social and economic aims and consequences. In democratic societies, citizen’s accounts of the impacts of policies ought to matter.

However, in the UK, the way that policies are justified is being increasingly detached from their aims and consequences, partly because democratic processes and basic human rights are being disassembled or side-stepped, and partly because the Government employs the widespread use of linguistic strategies and techniques of persuasion and neutralisation to intentionally divert us from their aims and the consequences of their ideologically (rather than rationally) driven policies. Furthermore, policies have become increasingly detached from public interests and needs.

Damian Green, who was the work and pensions secretary at the time the UN report was published. dismissed the highly critical findings . He said, shamefully, that the report was “patronising and offensive” and presented an outdated view of disability in the UK. He said Britain was “a world leader in disability rights and equality”.

But many of us – disabled citizens, disability activists, campaigners, charities and researchers – welcomed the report, saying it accurately highlighted the real economic and social hardships faced by disabled people after years of harsh spending cuts to social security and social care.

The shadow work and pensions secretary at the time, Debbie Abrahams, said the UN report was “crystal clear” in its identification of UK government failures. “It confirms that, despite Theresa May’s warm words, this government is failing sick and disabled people,” she said.

The UN committee said a range of measures introduced since 2010, including the bedroom tax and cuts to disability benefits and social care budgets, had disproportionately and adversely affected disabled people.

Spending cuts had negatively affected the rights of disabled people to live independently, to work and to achieve an adequate standard of living, the report said. The UN urged UK ministers to ensure the rights of disabled people were upheld.

Green said: “At the heart of this report lies an outdated view of disability which is patronising and offensive. We strongly refute its findings. The UN measures success as the amount of money poured into the system, rather than the work and health outcomes for disabled people. Our focus is on helping disabled people find and stay in work, whilst taking care of those who can’t.”

The government said at the time that it spent about £50bn a year to support sick and disabled people – a bigger proportion of GDP than countries including Canada, France and the US.

However, this is plainly untrue. In 2015, the government’s own figures show that even before some of the cuts were implemented, the UK was ninth out of 28 countries, when ranked in terms of the size of its social protection expenditure as a proportion of its gross domestic product (GDP). 

In fact Newton’s highly selective statistical ‘data’ was contradicted by the Office for National Statistics (ONS) who also reported that the UK actually spends less than France, as well as Norway, Germany and Spain on disability benefits.

Furthermore, Newton’s figure includes amounts that are not directly related to disability benefit, such as carers’ allowance, housing benefit, council tax allowance, and it also includes some NHS spending.

The government actually spent £39 billion on disability, incapacity and industrial injury benefits in 2017/18. That’s 76% of the total £51 billion that Newton claimed was spent.

Abrahams said the report echoed warnings Labour had been making since 2011 about the effects of the government’s policies on disabled people. It certainly echoed warnings many of us have been making – in my own case, since the welfare “reforms” in 2012.

“The UN committee is clear that its report examines the cumulative impact of legislation, policies and measures adopted from 2010 to October 2016, so the government’s claim that it is outdated does not stand up to scrutiny.

“I am also concerned that the government is labelling the report as patronising, when they are the ones dismissing the concerns raised by disabled people who helped instigate the inquiry in the first place.”

This dismissal is despite being presented with evidence from a wide range of organisations as well as disabled citizens, to whom Conservative policies are causing harm and distress.  Yet the government continue to distance themselves from the consequences of their own decision-making, opting to deny them instead. Those are not the reasonable actions of an accountable, democratic government. 

Decades of findings in sociology and psychology tell us that as soon as a social group are defined as an outgroup, the public start to see them differently. Because politicians have stereotyped people who claim welfare support, portraying only negative characteristics, the public also perceive only those characteristics. The government, with the help of the media, has purposefully portrayed people claiming welfare support as folk devils: lazy, dishonest, stupid and as scroungers, and so on. This is profoundly dehumanising. 

The people being harmed by policies have become outsiders, they’ve been pushed out of the circle of our moral community. The government clearly don’t think of the people enduring terrible distress and hardship as experiencing the same range of autonomy, needs, thought, emotion and motivations that they do; they don’t imagine them feeling things in the same way that they do. This disconnection – a failure to recognise common human characteristics in the other – means that they are denied some measure of empathy, and consequently a sense of ethical and democratic obligation and inclusion.

The Conservatives talk a lot about “evidence-based policy”, but they don’t walk the talk. A weight of evidence has highlighted the cruel, draconian effects of the Tories’ social polices. The government have chosen to deny and ignore it. 

This lack of appropriate response indicates a deliberately prejudiced, vicious attack on a significant minority of the population, which the government has absolutely no intention of stopping or putting right any time soon.

 

You can watch the whole debate that was secured by Rosie Duffield here

 

* Techniques of neutralisation: 

Used to switch off the conscience when someone plans or has done something to cause harm to others. 

The idea of techniques of neutralisation was first proposed by David Matza and Gresham Sykes during their work on Edwin Sutherland’s Differential Association in the 1950s. Matza and Sykes were working on juvenile delinquency, they theorised that the same techniques could be found throughout society and published their ideas in Delinquency and Drift, 1964.

They identified the following psychological techniques by which, they believed, delinquents justified their illegitimate actions, and Alexander Alverez further identified these methods used at a socio-political level in Nazi Germany to “justify” the Holocaust:

1. Denial of responsibility. The offender(s) will propose that they were victims of circumstance or were forced into situations beyond their control.

2. Denial of harm and injury. The offender insists that their actions did not cause any harm or damage.

3. Denial of the victim. The offender believes that the victim deserved whatever action the offender committed. Or they may claim that there isn’t a victim.

4. Condemnation of the condemners. The offenders maintain that those who condemn their offence are doing so purely out of spite, ‘scaremongering’ or they are shifting the blame from themselves unfairly. 

5. Appeal to higher loyalties. The offender suggests that his or her offence was for the ‘greater good’, with long term consequences that would justify their actions, such as protection of a social group/nation, or benefits to the economy/ social group/nation.

6. Disengagement and Denial of Humanity is a category that Alverez
added to the techniques formulated by Sykes and Matza because of its special relevance to the Holocaust. Nazi propaganda portrayed Jews and other non-Aryans as subhuman. A process of social division, stigma, scapegoating and dehumanisation was explicitly orchestrated by the government. This also very clearly parallels Gordon Allport’s work on explaining how prejudice arises, how it escalates, often advancing by almost inscrutable degrees, pushing at normative and moral boundaries until the unthinkable becomes tenable. This stage on the scale of social prejudice may ultimately result in genocide.

Any one of these six techniques may serve to encourage violence by neutralising the norms against prejudice and aggression to the extent that when they are all implemented together, as they apparently were under the Nazi regime, a society can seemingly forget its normative rules, moral values and laws in order to engage in wholesale prejudice, discrimination, exclusion of citizens, hatred and ultimately, in genocide.

In accusing citizens and the opposition of ‘scaremongering’, the Conservatives are denying responsibility for the consequences of their policies, denying harm, denying  distress; denying the victims and condemning the condemners.

 


 

I write voluntarily, to do the best I can to raise awareness of political and social issues. In particular I research and write about how policy impacts on citizen wellbeing and human rights. I also co-run a group on Facebook to support other disabled people going through ESA and PIP assessments, mandatory reviews and appeals.

I don’t make any money from my work. I am disabled and don’t have any paid employment. But you can contribute by making a donation and help me continue to research and write informative, insightful and independent articles, and to provide support to others. The smallest amount is much appreciated – thank you.

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Why won’t ministers come clean about the impact of cuts on disabled people? – Frances Ryan


B
ack in 2014, armed with only a laptop and phone, disabled campaigners started a hunt for the truth. As policies including the bedroom tax, the abolition of disability living allowance, and the rollout of controversial out-of-work sickness benefits hit, War on Welfare (Wow) called on the coalition government to carry out a cumulative impact assessment of the wave of disability cuts to measure the effect on disabled people. It resulted in a debate in parliament – the first time disabled people had secured a debate in the main chamber of the House of Commons – but no action

Now, four years on, Wow has gained the backing of a cross-party coalition that wants Theresa May’s government to calculate the overall impact of the so-called welfare reforms on disabled people. Every party except the Conservatives is in favour of a Commons debate on conducting this assessment, including the DUP. In light of the pressure over Northern Irish abortion reform, their support for detailed analysis of the impact of Tory disability cuts is another awkward clash between May and the DUP’s 10 MPs propping up her administration. But more than that, it’s a sign of hope that ministers may have to finally investigate just what damage their disability cuts are causing – from the social care crisis to cuts to multiple parts of the NHS, to the disastrous rollout of universal credit; now delayed for an extra year until 2023

Last week’s damning report by the National Audit Office (NAO) on universal credit castigated the system’s inability to protect and support “vulnerable claimants”. It follows the revelation this month that the government was forced to say it would repay thousands of severely disabled people made worse off under the UC system ahead of the high court ruling last week that it was “discriminatory” to have docked two disabled men’s benefits after transferring to UC. Following pressure from disability groups, this week ministers made another U-turn, this time to stop repeatedly testing some disabled people for personal independence payments.

The government’s austerity programme has resulted in multiple reductions in income since 2010 that have hit disabled people all at once and disproportionately. Being hit by the bedroom tax is tough – but losing your sickness benefits as well after being found “fit for work” is even harder.

If you need an insight into the damage these policies have done, just go to Wow Voices, a website set up by campaigners that features disabled people explaining the impact of cuts on them. One woman with terminal breast cancer writes of how, for the last 18 months, she’s been told she needs to be reassessed for her benefits every six months, and she’s frantic about the thought of losing her support. “I’ve cried more about this than my terminal diagnosis,” she says. 

The UN’s damning report in 2016 into the UK’s “violations” of disabled people’s rights has put further pressure on the government over its treatment of disabled citizens. Meanwhile, the Equality and Human Rights Commission’s own cumulative impact assessment shows that families with a disabled adult and a disabled child will lose £5,500 a year by 2022 as a result of tax and benefit changes – contradicting the government’s claim that such analysis would be “too complex” to do. 

This month, research by the Joseph Rowntree Foundation found around 650,000 people with mental and physical health problems were officially destitute in the UK last year – that means being so poor, they can’t afford deodorant, the electric, or regular meals – with social security changes found to be a key cause. It’s bad enough for ministers to take away state support from disabled people en masse, but to refuse to analyse its effects is the definition of irresponsible. The Conservatives must finally shine a light on the impact that disability cuts have had. What are they so afraid of?

 

Related

The government response to the WoW petition is irrational, incoherent nonsense on stilts

The government refuse to carry out a cumulative impact assessment of welfare “reforms”. Again

 


I write voluntarily, to do the best I can to raise awareness of political and social issues. In particular I research and write about how policy impacts on citizen wellbeing and human rights. I also co-run a group on Facebook to support other disabled people going through ESA and PIP assessments, mandatory reviews and appeals.

I don’t make any money from my work. I am disabled and don’t have any paid employment. But you can contribute by making a donation and help me continue to research and write informative, insightful and independent articles, and to provide support to others. The smallest amount is much appreciated – thank you.

Frank Field’s letter regarding the DWP’s non-existent/existent data: a Schrödinger kind of paradox

cat schro

The data is only real when someone looks for it

Following on from the article yesterday, (DWP spent £100m on disability benefit appeals over 2 year period), I have copied Frank Field’s letter to Esther McVey below, which highlights the discrepancy between what McVey informed the Work and Pensions Committee when they asked her to provide evidence regarding the costs of disability benefit appeals and mandatory reconsiderations in an inquiry into disability benefits, and the details provided, following a timely Freedom of Information request. 

Key facts

  • Department for Work and Pensions (DWP) spent £108.1 million on Personal Independent Payment (PIP) and Employment and Support Allowance (ESA) reviews and appeals since October 2015
  • Ministry of Justice (MoJ) spent £103.1 million on social security and child support tribunals in 2016/17
  • Around two-thirds of PIP and ESA tribunals have been won by claimants this year
  • More than 300,000 PIP and ESA decisions have been changed at review or appeal since October 2015

Figures obtained by the Press Association through a Freedom of Information (FoI) request show that the Department for Work and Pensions (DWP) has spent £108.1 million on direct staffing costs for ESA and PIP appeals since October 2015.  The cost covers mandatory reconsiderations, an internal DWP review, and appeals to tribunals run by HM Courts and Tribunals Service. 

This staggering amount of money is being spent on the administrative costs of a Department fighting to uphold the outcomes of its own incompetent and deeply flawed decision-making. This is unacceptably leaving thousands of ill and disabled people having to fight to receive lifeline support to which, as the high proportion of successful appeal outcomes informs us, they are legally entitled. Furthermore, when provided with a second chance to remedy incompetent decision-making at mandatory review, the Department has persistently continued to uphold the original flawed decision in many cases. 

Since October 2015, 87,500 PIP claimants had their decision changed at mandatory review, while a further 91,587 claimants went on to win their appeals at tribunal. In the first six months of 2017/18 some 66% of 42,741 PIP appeals went in the claimant’s favour, highlighting that both the original decision-making process and mandatory review are failing to effectively ensure eligibility for support is fairly and accurately assessed.

The figures for ESA since October 2015 show 47,000 people had decisions revised at mandatory reconsideration and 82,219 appeals went in the favour of those let down by the current system of assessment and DWP decsion-making.

It’s as if the system is weighted to refuse as many people as possible their lifeline support.

So far in 2017/18, 68% of 35,452 ESA appeals have gone in favour of the claimant.

Conservative peer Baroness Altmann, a former minister at the DWP, said the money could be spent on benefits for those who need them, rather than on the costs of fighting their claims.

“Disability benefits need an overhaul and, of course, we must not let people make bogus claims, but the extent of the appeals we are seeing clearly indicates that something is seriously wrong with the system,” she said.

Figures released to the select committee’s inquiry show further costs to taxpayers.

The Ministry of Justice says it spent £103.1 million on social security and child support tribunals in 2016/17, up from £92.6 million the year before and £87.4 million in 2014/15.

Around 190,000 cases were cleared with or without a hearing in 2016/17, the Ministry told the committee.

The select committee is due to publish the results of its inquiry into PIP and ESA on Wednesday.

Chair Frank Field has written to Esther McVey, the Work and Pensions Secretary, in the wake of the figures to question why MPs were not given such information.

DWP gave the committee the average costs of a mandatory reconsideration and appeal for PIP and ESA.

However, Field, a Labour MP, said the committee was unable to work out the full cost of the appeals process.

This was because it was told information on PIP appeals was not available on whether they were appeals from new claimants or those being reassessed, which have different costs.

The information released to the Press Association was broken down into costs for new claims and those undergoing reassessments.

Here is Field’s letter:

letter head

From the Chair
                                                                                                                            9 February 2018
Rt Hon Esther McVey
Secretary of State
Department for Work and Pensions

PIP appeal data

During our inquiry on PIP and ESA assessments, your Department kindly provided to us estimated unit costs of MRs and Appeals. This indicated that different costs are attached to PIP appeals depending on whether they relate to new or reassessed claims. 

Seeking to understand the financial implications of appeals for the Department, Committee staff inquired on 30 January: 

Of the 170,000 PIP appeals since 2013, how many were for new claims and how many were reassessments?  

We were duly informed:

The information on the number of PIP appeals is from HMCTS published statistics and this information is not available from HMCTS for new claims and reassessments separately.    

We were therefore unable to estimate the full cost of appeals to your Department, although the Ministry of Justice informed us that in 2016/17 its appeals expenditure was £103 million. 1

It was with some surprise, therefore, that we today received data released in response to an FOI request. This provided estimated costs per month spent on PIP appeals—broken down by new and reassessed claims.

You will be aware that we are shortly due to publish our report. That this data was provided in response to an FOI request, but not for our Report, is doubly regrettable since the key theme of our report is the need to introduce much greater trust and transparency into the PIP and ESA systems.

Might you please explain how this occurred?


1 Cost of Social Security and Child Support appeals, of which the majority relate to PIP/ESA.Franks sig

 

 

 

 

 

 


Related

A critique of the government’s claimant satisfaction survey

DWP spent £100m on disability benefit appeals over 2 year period

Thousands of disability assessments deemed ‘unacceptable’ under the government’s own quality control scheme

I don’t make any money from my work. But you can help if you like by making a donation to help me continue to research and write informative, insightful and independent articles, and to provide support to others. The smallest amount is much appreciated – thank you.
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DWP spent £100m on disability benefit appeals over 2 year period

Image result for welfare reform disability UK

Part 1 of this article is from the Press Association and part 2 is written by me.

 

The Department for Work and Pensions (DWP) has spent more than £100m in just over two years on administering reviews and appeals against disability benefits, figures show. 

Tens of millions of pounds a year are also spent by the Ministry of Justice on the appeals, about two-thirds of which were won by claimants in the past 12 months. 

The costs were described as “staggering” and a former Conservative minister said “something is seriously wrong with the system”. 

The DWP said a small proportion of decisions were overturned and most employment and support allowance and personal independence payment claimants were happy with their assessments. (However, please see: Summary of key problems with the DWP’s recent survey of claimant satisfaction.)

But the department is facing questions from the work and pensions select committee over the figures, following claims that it was not given similar information for MPs’ inquiry into PIP and ESA.

Figures obtained through a freedom of information request show the DWP has spent £108.1m on direct staffing costs for ESA and PIP appeals since October 2015. 

“Thousands of disabled individuals have had to fight to receive support to which they are legally entitled.”  

Since October 2015, 87,500 PIP claimants had their decision changed at mandatory reconsideration, while 91,587 others won their appeals at tribunal.

In the first half of 2017-18, 66% of 42,741 PIP appeals went in the claimant’s favour. 

The figures for ESA since October 2015 show 47,000 people had decisions revised at mandatory reconsideration and 82,219 appeals went in the claimant’s favour. 

So far in 2017-18, 68% of 35,452 ESA appeals have gone in favour of the claimant.

Ros Altmann, a Conservative peer and former DWP minister, said the money could be spent on benefits for those who need them, rather than the costs of fighting claims. 

Figures released to the select committee inquiry show further costs to taxpayers. 

The Ministry of Justice spent £103.1m on social security and child support tribunals in 2016-17, up from £92.6m the year before. 

In a letter to the committee, the then justice minister Dominic Raab said the average cost of an appeal had more than doubled to £579 in 2014-15 because PIP cases “now comprise a much larger proportion of the caseload” and require more members on the tribunal.

The MPs are due to publish the results of their inquiry on Wednesday. 

Frank Field, the committee chairman, has written to Esther McVey, the work and pensions secretary, to ask why MPs were not given the information. 

The DWP gave the committee the average cost of a mandatory reconsideration and appeal for PIP and ESA, but Field said it was unable to work out the full cost because information on whether PIP appeals were from new claimants or those being reassessed, which have different costs, was not available.

“That this data was provided in response to an FoI request, but not for our report, is doubly regrettable, since the key theme of our report is the need to introduce much greater trust and transparency into the PIP and ESA systems,” Field wrote.

A DWP spokeswoman said it was working to improve the process, including recruiting about 190 officers who will attend PIP and ESA appeals to provide feedback on decisions.

“We’ve already commissioned five independent reviews of the work capability assessment, implementing more than 100 of their recommendations, and two independent reviews of PIP assessments,” she said. 

“Meanwhile, we continue to spend more than £50bn a year on supporting people with disabilities and health conditions.”


Part 2

I’ll add to this, however, that according to the Office for National Statsitics (ONS) spending on sickness and disability, combined with social care costs was £53,275bn for 2016/17. Sickness and disability benefit spending was £43,545bn, and personal social services was 9,730bn.  

The National Audit Office (NAO) scrutinises public spending for Parliament and is independent of government. An audit report in 2016 concluded that the Department for Work and Pension’s spending on contracts for disability benefit assessments was expected to double in 2016/17 compared with 2014/15. The government’s flagship welfare-cut scheme will be actually spending more money on the assessments themselves than it is saving in reductions to the benefits bill – as Frances Ryan pointed out in the Guardianit’s the political equivalent of burning bundles of £50 notes.

The report also states that only half of all the doctors and nurses hired by Maximus – the US outsourcing company brought in by the Department for Work and Pensions to carry out the assessments – had even completed their training.

The NAO report summarises:

5.5
Million assessments completed in five years up to March 2015

65%
Estimated increase in cost per ESA assessment based on published information after transfer of the service in 2015 (from £115 to £190)


84%
Estimated increase in healthcare professionals across contracts from 2,200 in May 2015 to 4,050 November 2016

£1.6 billion
Estimated cost of contracted-out health and disability assessments over three years, 2015 to 2018

£0.4 billion
Latest expected reduction in annual disability benefit spending

13%
Proportion of ESA and PIP targets met for assessment report quality meeting contractual standard (September 2014 to August 2015).

This summary reflects staggering economic incompetence, a flagrant, politically motivated waste of tax payers money and even worse, the higher spending has not created a competent or ethical assessment framework, nor is it improving the lives of sick and disabled people. 

The National Audit Office (NAO) found last year that the number of completed ESA assessments were below target, despite an expected doubling of the cost to the taxpayer of the contracts for disability benefit assessments, to £579m a year in 2016/17compared with 2014/15.

The NAO said that nearly 1 in 10 of the reports on disabled people claiming support were rejected as below standard by the government. This compares with around one in 25 before Atos left its contract. 

The provider was not on track to complete the number of assessments expected last year and has also missed assessment report quality targets. 

Atos abandoned its contract early following mounting evidence that hundreds of thousands of ill and disabled people have been wrongly judged to be fit for work and ineligible for government support. 

The proportion of Capita PIP tests deemed unacceptable reached a peak of 56% in the three months to April 2015.

For Atos, the peak was 29.1% for one lot in June 2014. 

More than 2.7million people have had a DWP decision regarding PIP since the benefit launched in 2013 – this suggests that tens of thousands went through an ‘unacceptable’ assessment.

The PCS union, which represents lower paid workers at the Department for Work and Pensions (DWP), told MPs during the Work and Pensions Committee inquiry: “We do not believe that there is any real quality control.

“Our belief is that delivering the assessments in-house is the only effective way for DWP to guarantee the level of quality that is required.” 

In evidence submitted to the Work and Pensions Committee, Capita said 95% of assessments are now deemed acceptable – giving the figure for the past year. The company said:

“This represents a significant improvement from previous years and producing quality reports for the DWP remains a top priority within Capita.”

“Additionally, we use a range of intelligence as indicators, to identify disability assessors who may not be operating at the high quality output levels we expect.

“This includes data from audit activity, coaching and monitoring.

“This enables us to continually monitor performance, and take appropriate internal actions… where necessary to ensure we continue to deliver a quality service.”

Atos claim that 95.4% of tests are now acceptable and more work was needed to ensure the auditing process itself is “consistent”, adding: “We strive to deliver fair and accurate assessment reports 100% of the time.”

It also emerged that Atos and Capita employ just FOUR doctors between them. Most employees within the companies are nurses, paramedics, physiotherapists or occupational therapists. Capita’s chief medical officer Dr Ian Gargan confessed he was just one of two doctors at the firm’s PIP division, which has 1,500 staff.

He told the Commons Work and Pensions Committee: “Two thirds of our professionals have a nursing background and the remainder are from occupational therapy, physiotherapy and paramedicine.”

Dr Barrie McKillop, clinical director of Atos’ PIP division, admitted they too only had two doctors among their staff. 

Frank Field said: “You’ve got two doctors each, mega workload – maybe there’s a lot of doctors out there who would long for some part-time work.” 

“You haven’t sought them out to raise your game, have you?”

However Dr McKillop insisted Atos’ current model “is a strong one” and people “bring clinical experience in different areas”.

You can listen to this submission to Work and Pensions Committee’s PIP and ESA evidence session here. 

The witnesses are: Simon Freeman, Managing Director, Capita Personal Independence Payments, Dr Ian Gargan, Chief Medical Officer, Capita Personal Independence Payments, David Haley, Chief Executive, Atos Independent Assessment Services and Dr Barrie McKillop, Clinical Director, Atos Independent Assessment Services.

You can access the written evidence here.

Many of us have been campaigning for reforms to the failing system – complaints about PIP rose by nearly 880 per cent last year – work and pensions inquiry report adds more pressure on the government to address a system that is failing so many people.

Since 2013 there have been 170,000 PIP appeals taken to the Tribunal: Claimants won in 108,000 cases – 63%. In the same time, there have been 53,000 ESA appeals. Claimants won in 32,000 – or 60% – of those cases.

Ministers have been citing statistics from a recent survey about satisfaction with Department for Work and Pensions services. However, I have critiqued the survey, and in particular, I faulted it because those claimants whose benefit had been disallowed by the Department were excluded from the survey. This means that the people most ikely to register their dissatisfaction with the Department in the survey were not allowed to participate.

I also found some statistics that are not fully or adequately discussed in the survey report – these were to be found tucked away in the Excel data tables which were referenced at the end of the report – and certainly not cited by Government ministers, are those particularly concerning problems and difficulties with the Department for Work and Pensions that arose for some claimants. 

It’s worrying that 51 per cent of all respondents across all types of benefits who experienced difficulties or problems in their dealings with the Department for Work and Pensions did not see them resolved. A further 4 per cent saw only a partial resolution, and 3 per cent didn’t know if there had been any resolution.

disatisfied

–  means the sample size is less than 40.

In the Employment and Support Allowance (ESA) group, 50 per cent had unresolved problems with the Department, and in the Personal Independent Payment (PIP) group, 57 per cent of claimants had ongoing problems with the Department, while only 33 per cent have seen their problems resolved. 

It is time that the Government stopped glossing over the fundamental problems with a system of assessment and decision making for disability benefits that is costing so much to administrate, it’s causing distress, hardship, and sometimes, it is costing people their lives. Fake statistics and PR designed surveys don’t hide the mounting evidence of the catastrophic impact that the Conservative reforms have had on many people.

The impact of the welfare reforms on disabled people has been brutal. More than a third of those who have had their benefit cut say they’re struggling to pay for food, rent and bills, while 40% say they’ve become more isolated as over 50,000 disabled people lost access to Motability vehicles.

To the government’s utter shame, they have claimed that this state of affairs is acceptable for the past 4 years.  It never was, and it needs to change.

 


 

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Thousands of disability assessments deemed ‘unacceptable’ under the government’s own quality control scheme

351-burden-cuts-by-populationInfographic from The Centre for Welfare Reform

New figures released by the Government indicate that neither Atos nor Capita – the private companies contracted by the government – paid more than £500m to assess people for Personal Independence Payments (PIP) – are actually meeting the target of 97% of assessments conforming to standards. 

The government have released the data to the Commons Work and Pensions Committee, which was due to take evidence from Atos and Capita regarding the assessments yesterday.

While private companies carry out the assessments, it is the Department for Work and Pensions (DWP) that makes the final decision on whether to award people financial support. However, those decisions are informed by the contents of reports that privately contracted ‘health professionals’ write during the assessment process.

Latest audits show that 6.4% of PIP assessments were deemed “unacceptable” in the three months leading up to October 2017.

Furthermore, the two companies have never met the target once, by the standard set using the government’s current method of quality control and measuring performance for PIP assessments.

Audits of the 4,200 PIP assessments take place every three months and are split between three ‘lots’ that are managed by different companies.

Lot 1 is assigned to Atos trading as ‘Independent Assessment Services’ (IAS). The Department for Work and Pensions (DWP) said 6.2% of its assessments were “unacceptable” in the three months to October 2017.

Lot 3 is also assigned to IAS. The DWP said 5.7% of the assessments were “unacceptable” in the three months to October 2017.

Lot 2 is assigned to Capita. The DWP said 7.3% of its assessments were “unacceptable” in the three months to October 2017.

        The government’s own figures on the rate of ‘unacceptable’ PIP tests.                                   (Image: Department for Work and Pensions)

The current performance measure – which sees an independent team pick cases at random – was launched in March 2016. Under the previous method, the private providers audited assessments themselves. 

The National Audit Office (NAO) found last year that the number of completed ESA assessments were below target, despite an expected doubling of the cost to the taxpayer of the contracts for disability benefit assessments, to £579m a year in 2016/17compared with 2014/15.

The NAO said that nearly 1 in 10 of the reports on disabled people claiming support were rejected as below standard by the government. This compares with around one in 25 before Atos left its contract. 

The provider was not on track to complete the number of assessments expected last year and has also missed assessment report quality targets. 

Atos abandoned its contract early following mounting evidence that hundreds of thousands of ill and disabled people have been wrongly judged to be fit for work and ineligible for government support. 

The proportion of Capita PIP tests deemed unacceptable reached a peak of 56% in the three months to April 2015.

For Atos, the peak was 29.1% for one lot in June 2014. 

More than 2.7million people have had a DWP decision regarding PIP since the benefit launched in 2013 – this suggests that tens of thousands went through an ‘unacceptable’ assessment.

The PCS union, which represents lower paid workers at the Department for Work and Pensions (DWP), told MPs during the Work and Pensions Committee inquiry: “We do not believe that there is any real quality control.

“Our belief is that delivering the assessments in-house is the only effective way for DWP to guarantee the level of quality that is required.” 

In evidence submitted to the Work and Pensions Committee, Capita said 95% of assessments are now deemed acceptable – giving the figure for the past year. The company said:

“This represents a significant improvement from previous years and producing quality reports for the DWP remains a top priority within Capita.”

“Additionally, we use a range of intelligence as indicators, to identify disability assessors who may not be operating at the high quality output levels we expect.

“This includes data from audit activity, coaching and monitoring.

“This enables us to continually monitor performance, and take appropriate internal actions… where necessary to ensure we continue to deliver a quality service.”

Atos said 95.4% of tests are now acceptable and more work was needed to ensure the auditing process itself is “consistent”, adding: “We strive to deliver fair and accurate assessment reports 100% of the time.”

However, many disabled people would beg to differ. See for example: Essential Information for ESA claims, assessments and appeals. The comments section alone highlights just how unfair and inaccurate Atos assessments commonly are.

It also emerged that Atos and Capita employ just FOUR doctors between them. Most employees within the companies are nurses, paramedics, physiotherapists or occupational therapists. Capita’s chief medical officer Dr Ian Gargan confessed he was just one of two doctors at the firm’s PIP division, which has 1,500 staff.

He told the Commons Work and Pensions Committee: “Two thirds of our professionals have a nursing background and the remainder are from occupational therapy, physiotherapy and paramedicine.”

Dr Barrie McKillop, clinical director of Atos’ PIP division, admitted they too only had two doctors among their staff. 

Frank Field said: “You’ve got two doctors each, mega workload – maybe there’s a lot of doctors out there who would long for some part-time work.” 

“You haven’t sought them out to raise your game, have you?”

However Dr McKillop insisted Atos’ current model “is a strong one” and people “bring clinical experience in different areas”.

You can listen to yesterday’s Work and Pensions Committee’s PIP and ESA evidence session here. 

The witnesses are: Simon Freeman, Managing Director, Capita Personal Independence Payments, Dr Ian Gargan, Chief Medical Officer, Capita Personal Independence Payments, David Haley, Chief Executive, Atos Independent Assessment Services and Dr Barrie McKillop, Clinical Director, Atos Independent Assessment Services.

You can access the written evidence here.

You can access the written evidence and watch the session online from the previous session here from 22 November.

The inquiry is ongoing. The Committee is interested in receiving recommendations for change both on the assessment process for each benefit individually, and on common lessons that can be learned from the two processes. 

 

Related 

Government guidelines for PIP assessment: a political redefinition of the word ‘objective’

 


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Our social security has been redesigned. It’s now a welfare deterrent

PIP

Hunger and desperation used quite ruthlessly by a “health care professional” to controversially justify refusing a disability support claim. Access to food banks can only happen if you are referred by a professional, such as a doctor or social worker. Furthermore, you can generally have a maximum of only 3 referrals per year. The ESA and PIP eassessment guidance says that a person must be able to walk the distance specified “reliably, consistently, safely and in a timely manner.”

universal-credit.jpg
Iain Duncan-Smith struggled financially once, but then he got off his backside and was given a Tudor mansion by his father-in-law, the fifth Baron Cottesloe, which proves rewards come to those prepared to make an effort.  Reuters.

“Universal Credit doesn’t go far enough – work won’t pay until people are running naked through stinging nettles to get their benefits.

As Universal Credit develops, it can encourage other skills, so if your electricity has been cut off, you have to screw your application form into a ball and dribble it through a line of cones before kicking it into a bucket. That way you can soon come off benefits and earn £5m a year as a winger for Manchester City.” Mark Steel, writing for the Independent

The Conservative notion of “deserving” and “undeserving” poor is a false dichotomy. No-one deserves to be poor

“Deserving” is a politically divergent word if there ever was one. The Conservatives have used it to apparently wage an all out class war, using austerity as a smokescreen. They certainly don’t take the side of the proverbial underdog. In fact the more need you have, the less this government considers you “deserving” of support and sympathy.

Policies aimed at people with what are politically regarded as “additional needs” are largely about ensuring your compliance, conformity and commitment to “behavioural change”, on the assumption that people somehow erroneously “choose” to need financial support. Claiming any form of state support has come to entail a deeply hostile and extremely challenging process that is causing psychological distress and often, physical harm, to our most vulnerable citizens. There are plently of examples of cases where this has happened documented on this site alone.

Such a disciplinarian mindset is now embedded in social security policy, rhetoric and administration. But we’ve been here before, back in 1832, when the Poor Law Amendment Act was aimed at categorising and managing “deserving” and “undeserving” poor. Those considered “deserving” were unfortunately placed in workhouses and punished by a loss of citizens freedoms and rights, in order to “deter” people from being poor. (See also The New New Poor Law, 2013.)

I’ve yet to come across a single case of someone being punished out of their poverty. Someone ought to send every government minister a copy of Maslow’s hierarchy of human needs, and remind them all that our post-war social security was originally designed and calculated to ensure people could meet the costs of basic survival needs, such as for food, fuel and shelter.

It was recognised back then that people struggling with basic survival requirements were highly unlikely to fulfil other higher level psychosocial potential, such as looking for work. If we want people to find work, we must first ensure they have the necessary resources to do so. And that the work available will make a real difference to their standard of living. 

Poor people don’t create poverty, state decision-making does. The economy and labor market conditions do. The punitive approach to poverty didn’t work in the 1800s and 1900s, and it isn’t working and can’t possibly be made to work now. It’s an ideological dead horse. It died because of the brutal and unrelentless use of too much political brutality, the heavy hand of the state offering all stick and no carrots for poor people.

Being poor is itself punishing enough. Now the poor are being punished for being punished with poverty.  No-one chooses to be poor, our overarching socioeconomic organisation is founded on the very principles of competition. Neoliberalism invariably means there will be a few “winners” (1%) and a lot of “losers” (99%). It’s embedded in the very nature of such a competitive system that emphasises individualism, rather than collectivism, to create increasing inequality and poverty. 

It’s worth considering that people on low pay, or with part-time hours in work are also being sanctioned, if they claim “top up” benefits to supplement their exploitative rate of pay or poor and unstable work conditions. This fact is hardly a good advertisment for the government’s claim of “making work pay”, unless of course we refer back to the poor law reform “deterrence” of 1834. Apparently, making welfare sufficiently punitive to deter people from claiming it is how we make work pay, not by raising wages in line with the cost of living. Silly me. I mistook a propaganda soundbite at face value. It seems old ideolologies die hard, with a vengeance.

Apparently it’s an individual’s fault for not “progressing in work”. Nothing to do with increasingly precarious employment situations, executive decision-making, or a deregulated labor market, of course. 

In-work benefits have effectively subsidised employers’ wage costs. Yet low paid workers are being punished by the government for this state of affairs.

It’s not so long ago that we had a strong trade union movement that used collective bargaining as a method of improving wages and working conditions. But the free market ideologues don’t like trade unions, or welfare provision. They like a neat, tidy and very small, limited interventionist state. Or so they claim.

The paradox, of course, is that in order to reduce supportive provisions, and dismantle the welfare state in order to fulfil the terms and conditions of neoliberalism, the government has to implement strategies that ensure citizen compliance. Many of those strategies are increasingly authoritarian, rather than “non interventionist”, in nature.

It’s not the welfare state, but the state of welfare that is the pressing problem

Private companies have become more firmly embedded in the core concerns of all departments of government in designing and delivering on public and social policies, and policies have become increasingly detached from public need, and more directed at meeting private interests, largely involving making huge and private profits. The Conservatives don’t seem to consider that rogue private businesses like G4S, Atos, Maximus, A4E, and so on, are extensions of the state, fulfilling what are, after all, state-determined functions.

Of course this creates an imbalance between the role of the welfare state in aiding private capital and its role in maintaining and supporting labor, and fulfilling the basic needs of citizens. Corporate welfare underpins neoliberal economies, and it costs the public far more than reduced public provisions promises to save.

In January 2016, the National Audit Office (NAO) published its evaluation of the DWP’s health and disability assessment contracts. It said the cost of each Work Capability Assessment (WCA) had risen from £115 under Atos to £190 under Maximus. The report also states that only half of all the doctors and nurses hired by Maximus – the US outsourcing company brought in by the Department for Work and Pensions (DWP) to carry out the assessments – had even completed their training.

The NAO report summarised:

5.5
Million assessments completed in five years up to March 2015

65%
Estimated increase in cost per Employment and Support Allowance (ESA) assessment based on published information after transfer of the service in 2015 (from £115 to £190)


84%
Estimated increase in healthcare professionals across contracts from 2,200 in May 2015 to 4,050 November 2016

£1.6 billion
Estimated cost of contracted-out health and disability assessments over three years, 2015 to 2018

£0.4 billion
Latest expected reduction in annual disability benefit spending

13%
Proportion of ESA and Personal Independence Payment (PIP) targets met for assessment report quality meeting contractual standard (September 2014 to August 2015).

Before 2010, cuts to disability support were unthinkable. Now the Treasury regards our provision as their pocket money for tax cuts for the very wealthy

This summary reflects staggering economic incompetence, a flagrant, politically motivated waste of tax payers money and even worse, the higher spending has not created a competent or ethical assessment framework, nor is it improving the lives of sick and disabled people. Some people are dying after being wrongly assessed as “fit for work” and having their lifeline benefits brutally withdrawn. Maximus is certainly not helping the government to serve even the most basic needs of sick and disabled people.

However, Maximus, and other private companies involved in the delivery of welfare programmes are serving the needs of a “small state” doctrinaire neoliberal government, and making a massive profit in doing so. It would cost much less to simply pay people the support they were once simply entitled to. However, the Conservatives are systematically dismantling the UK’s social security system, not because there is an empirically justifiable reason or economic need to do so, but because the government has purely ideological, anticollectivist prescriptions. 

As well as the heavy cost of each assessment to the public purse, there is also the considerable cost of many tribunals, because of the many “wrong decisions”on the part of the Department for Work and Pensions. That’s despite the fact that the government introduced another layer of bureacracy in the form of “mandatory review” in order to deter appeals. People going through mandatory review for a decision to stop their ESA cannot claim ESA again until after mandatory review (if you need to appeal, you can claim ESA once you have the review decision), and so are forced to either try and claim Universal Credit, going 6 weeks at least without any support, or to wait out the Review outcome, which has no set time limit, but usually takes at least 6 weeks for the decision about the original decision. Which is usually the same decision as the original decision, due to outrageous targets that were revealed in the department’s response to a Freedom of Information request, that stated staff conducting mandatory reconsideration reviews were held to a “key performance indicator” that said “80 per cent of the original decisions are to be upheld”.

This is a government that claims social security is “unsustainable” and a “burden” on the public purse, yet has no problem with an extraordinary profligacy with public funds and dispossessing tax payers when it comes to implementing “cost-cutting” and draconian welfare “reforms.” Conservative anti-welfare dogma and traditional prejudices are costing the UK billions of pounds. 

The Tories are all about ideology and not facts. As two authors astutely noted recently, the government seems to be driven by an idea that creating the conditions of purgatory for those they consider “undeserving” will somehow cleanse, redeem and purify people into not being so sinfully poor.  So it’s not actually “welfare” any more, but rather, it’s a “correctional” institution, for coercing citizens into conformity, compliance and a class contingent meekness, with a liberal dash of the protestant work ethic in with the catholic inquisition flavoured ingredients in the mix. Yes, the nasty authoritarian Conservatives really do think like this.

Disability support is virtually impossible to access for many people that doctors consider severely disabled, and involves a measured and ritualised humiliation. The assessments are solely designed to look for “discrepancies” in people’s accounts of how their illness/disability impacts on your day to day living. In other words, it is aimed at looking for reasons, no matter how flimsy, to ensure that welfare support for disabled and ill people is pretty much unobtainable.

Those questions you are asked by the (inappropriately named) Health Care Professional (HCP) that seem like innocent conversation, such as “Do you watch TV? Do you like the Soaps?” translate onto a report that says “Can sit unaided for at least half an hour”. “Do you have a pet?”becomes “Can bend to feed cat/dog.” “Do you use the internet at all?” becomes “No evidence of focus or cognitive difficulties, adequate hand dexterity.”

If you wear any jewellry, that may be noted and used as evidence that you have dexterity in your hands, even if you have severe arthritis and can’t fasten your buttons or a zip,  you won’t be asked if you ever remove your locket/ring/earrings. It will be assumed that you do. It’s a kind of opportunism of neglect and assumption used by HCPs to justify refusing some elements of PIP, or all of your claim. Or it’s the difference between being placed in the ESA Support Group, being placed in the WRAG on the lower award, or simply being refused an award altogether, and told you are “fit for work”. 

If you are unfortunate enough to need a referral to a food bank, and you actually manage to get to the appointment,  because you are desperate, that may also be used as evidence that you can walk further than 200 or 500 metres, even if you can’t, and managed to get a lift there and back.

Challenging such ridiculous assumptions wears you down. It creates distress when someone acting as a gatekeeper to the support you need dismisses your medical reports and account with such disdain, just stopping short of calling you a liar. Challenging the reasons provided for the DWP refusing you a PIP or ESA award is tedious, very stressful and time consuming and tiring. I’m sure that if you manage to do so successfully, even the fact that you managed to collate evidence, ask you doctor for supportive evidence and so forth may be used as evidence that you can function too well to warrant any support. If you demonstrate any ingenuity in coping with your condition, you’ve basically had it.

Once upon a time, support for disabled people was designed to help us remain independent, and to enable us to participate in society. PIP is non means-tested and people can claim it (allegedly) whilst in work.

However, I worked for social services until I became too ill to work. I loved my job, and my salary was very good, too. It was a terribly dehumanising experience to have to face the fact I was no longer well enough and fit for my post. 7 years later, at my PIP assessment, it was decided that my previous job “proved” that I don’t currently have “any cognitive problems.”

That’s despite the assessor acknowledging  in the report I now even need an aid to remember to take my treatments and medications, and that during the appointment, I had to be reminded several times what I’d been asked, as I kept forgetting what I was supposed to be answering. I have systemic lupus erythematosus (SLE), and cognitive dysfunction is very commonly experienced  symptom of this illness

People have even been refused PIP at appeal because they “spend too much time on Facebook.” Too much for what, exactly? Last time I checked, there were no laws in place that meant sick and disabled citizens were prohibited from using social media. Since when did it become acceptable for government officials to endorse and promote the social exclusion of disabled people online? 

But apparently, contradictions and paradoxes are allowed if you happen to be the assessing HCP. The report said that I was “thin” abut “adequately nourished”. She didn’t check my vitamin and mineral levels at all. Nor did she ask me about what I ate and how often. She just said that the aids I have were “adequate” (a perch stool, easy to use tin opener and specially designed easy to use cutlery, which are not especially designed for disabled people, but are easier for me to use because of the handle design and the steak knives instead of standard ones.)

What’s the point of welfare “support” if so few people are able to access it, despite their obvious need?

The United Nations (UN) inquiry into the allegations many of us made regarding the systematic abuse of the human rights of disabled people in the UK has exposed the multiple injustices of targeted cuts and the disproportionate burden of austerity heaped on sick and disabled people, their carers and their families, evidencing and detailing the effects of a range of policy measures affecting them that have been introduced since 2010. These include the bedroom tax and cuts to disability benefits, funds to support independence and social care.

The report concludes that the overall effect of what is now an essentially punitive welfare regime, which has been based almost entirely on unevidenced political claims and assumptions, has had an extremely detrimental and regressive effect on the rights of disabled people, to live independently, to meet their basic needs, to seek and stay in work,  and to be able to live an ordinary life as citizens.

The UN report documented multiple violations of disabled people’s rights, including the way that they are politically portrayed as being lazy and a “burden on taxpayers”, the harm to health caused by unfair assessments, the cuts to legal aid and curtailed access to justice, the imposition of the bedroom tax and the ending of the Independent Living Fund.

I wrote a lengthy article about the unsurprising but nonetheless disquieting report findings and recommendations, as I read throughit at the time, here.

The government have of course indignantly refused to accept the findings of the UN, or accept the accounts of individuals and campaigners like me, disability groups and charities, and other organisations. That’s because the government prefer to cling relentlessly to free market dogma and their traditional prejudices rather than face empirical evidence, facts and truths.

The days of genuine support, to ensure disabled people can maintain dignity and independence, and to be socially, economically, politically and culturally included, are gone. PIP and ESA focus exclusively on what you can’t do: on “functionality”. If you walk your dog or take a holiday, this is taken to somehow indicate that you are not ill or disabled enough to need support. In fact the media turns you into some kind of nasty folk devil and state parasite for trying to live as normal life as possible. If the government and media had their way, we would be trapped indoors in abject misery, or institutionalised.

How dare we try to live an ordinary life.

The government have formulated draconian policies aimed particularly at disabled people. And unemployed people, low paid people, and young people. And migrants. And old people who, like many disabled people, have paid in contributions towards a welfare system, should they need it, but now they also have to work until they drop.

Hey, and you thought governments are elected to meet public needs and spend our money wisely? No, apparently we’re here to serve government needs, to behave exactly as the Conservatives think we should. 

Welfare as a deterrent to… well, welfare.

 

Image result for poverty welfare punishment

And social security has been redesigned to punish those citizens who have the misfortune to find themselves in poverty.

 


 

I don’t make any money from my work. But you can support Politics and Insights and contribute by making a donation which will help me continue to research and write informative, insightful and independent articles, and to provide support to others. The smallest amount is much appreciated, and helps to keep my articles free and accessible to all – thank you. 

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PIP assessments are dehumanising, degrading, very distressing and potentially harmful

Related image

I co-run a support group for people going through Employment and Support Allowance (ESA) and Personal Independent Payment assessments and appeals. I have heard many people’s harrowing experiences of these assessments, I have written about them, and I’ve written critically about the assessment process itself. However, it isn’t until you experience one of these assessments for yourself that you may fully appreciate just how utterly distressing, surreal, degrading and dehumanising the process actually is. Or how potentially harmful.

I had my first ever Personal Independence Payment (PIP) assessment today. I have systemic lupus and pulmonary fibrosis, among other problems, all of which affect my mobility and capacity to live independently, day-to-day. My consultant is a rheumatologist and more recently, I have been seeing a pulmonary consultant. Other specialists I sometimes need to see are a neurologists, opthalmologists, physiotherapists and haematologists.

After a bout of pneumonia and sepsis earlier this year, which almost cost me my life, a follow-up scan found further lung problems, which have probably been ongoing for some time. Fibrosis can happen as a result of connective tissue illnesses like lupus, scleroderma or rheumatoid arthritis. It can also happen to people whose conditions have been treated with a chemotherapy called methotrexate – which I was given from 2012 onwards. My mother, who had rheumatoid arthritis, died suddenly of pulmonary fibrosis in 2009. The coroner said it was a complication of her illness, not because of a treatment. She was never given methotrexate.

The interview part of the assessment seemed okay, initially. I provided further evidence regarding my recent assessment, undertaken by my local council’s Occupational Therapy Service, which led to the prescription of aids and appliances in my home. The assessment report was quite clear about my basic medical conditions and day-to-day mobility limitations. I was asked about medication. I explained that following my second appointment with my new rheumatologist, I was prescribed some new medications, including one for secondary Raynaud’s syndrome, which has arisen because of my having lupus, as a complication.

A recent thermal imaging and microvascular study shows that this condition has got worse over time, and so my rheumatologist prescribed a treatment called Amlodipine. It concerned me that the Health Care Professional looked confused and skeptical when she asked for a list of my medication, and she said that this is a treatment for high blood pressure, she seemed to disbelieve what I had told her. I explained that I don’t have high blood pressure, and that calcium channel blockers such as Amlodipine are used for more than one condition, such as certain types of angina – which I also don’t have – and secondary Raynaud’s syndrome, which I do have. 

I was asked about the impact of my illnesses on my day-to-day living. At one point I explained that I find preparing and chopping food difficult because of the tendonitis in both wrists. I have been diagnosed with De Quervian’s Tenosynovitis, which makes putting any weight or strain on my wrists very painful.

I was also concerned that I was then asked if I have had my wrists splinted. This shows a lack of understanding about my condition. I have had splints but it did not make any difference to my wrists. I was diagnosed with De Quervain’s syndrome by my rheumatologist and a physiotherapist in 2011, but had the problem for considerably longer. As my physiotherapist pointed out, my wrists are not injured or strained through overuse and so won’t get better with rest or splinting. This is because they are damaged by a chronic systemic inflammatory disease process that is ongoing, and he told me it is medication rather splinting that is needed to try to manage the level of inflammation in my body as a whole.

Splinting my wrists is akin to putting a plaster cast on a knee affected by rheumatoid arthritis, or a plaster on cancer. It won’t help at all. That the HCP didn’t seem to understand the difference between the chronic inflammatory symptoms of connective tissue disease and curable strain and injury related conditions bothered me.

Another thing that bothered me is that I was asked about the frequency of my periods of severe illness and how that impacts on my ability to manage things like personal care. She wanted an actual number of days, which of course is impossible to give with any precision when you have a fluctuating condition. Sometimes I struggle getting dressed and spend days on end in my pyjamas, and the HCP asked me “how often”? I tried to give an average number of days per month, but because the acute flares of my illness vary so much from month to month, week to week, that was very difficult to do. She also seemed impatient that I struggled to try and work out an average. I have cognitive problems as a result of my illness.

Another problem is that I struggle with washing my hair sometimes, and she demanded to know how often I need assistance with that task. The best I could do was to explain that when I have no help, I can go up to two weeks at a time with matted, unwashed hair. I felt embarrased and ashamed enough in having to discuss these personal difficulties with someone I have never met, but it was made to feel somehow like a confict, that part of the discussion. I felt that if I didn’t provide precise and quantified “evidence”, the qualitative details – my experience of my disability – would not be taken seriously by the HCP. 

Another problem with the assessments that worries me is that there was nowhere near enough time to discuss the complex impact of all my complex medical conditions and wide-ranging symptoms on my day-to-day life.

The ‘examination’

After discussion of my conditions and how my illnesses impact on upon my day-to-day living, I was asked to do some tasks during an examination, which have left me in a huge amount of pain. I also felt stripped of dignity, because I struggled to manage the exercises and felt very anxious and distressed. I was shocked at some of the tasks I was asked to do, and also shocked at the fact I couldn’t actually undertake a number of these tasks. My shock turned to anger later, as I had to leave in significantly more pain that I had arrived with at the start of the appointment. I was also asked to do each of the unfamiliar tasks and exercises in quick succession, which made assessing any likely pain and potential damage difficult before trying to do them.

It is also a traumatic experience to suddenly discover that your illness has insidiously robbed you of a degree of mobility that you previously assumed you had. That is always a shock. 

Last year, my GP was carrying out a standard examination and smear, when my hips locked painfully, as I tried to move my legs. She couldn’t completeher examination and the procedure as my egs would not move. After this, she told me to not get up for a while, and she described the experience – discovering that my mobility had been painfully restricted by my illness – as “traumatic.” It was.

I have, among other problems, very painful inflammatory arthritis and tendonitis in my knees, hips, spine, Achilles’ tendons and ankles. Because the inflammation and damage is bilateral and symmetrical – affecting both knees, both hips, both ankles and both Achilles’ tendons equally, and across my lower spine – it leaves me unable to compensate for pain, stiffness and weakness by shifting my weight and balance onto another limb, as that is also weak, stiff and painful. It leaves me unsteady. I often use a stick to stop me falling over, but as an aid for walking, it’s pretty useless generally, because my shoulders, elbows and wrists also won’t take any of my weight.

The inflammation process causes marked stiffness as well as severe pain, and so restricts my mobility. I was asked to “squat down” at the start of the examination. I refused, and told the assessor that I couldn’t do that. It would have certainly caused me severe pain and possibly an injury. As I can’t support weight on my shoulders and wrists – I also have osteoporosis in my wrists and hands –  had I tried and fallen backwards, I may have easily ended up with a fractured bone. I was horrified at being asked to do that. I struggled to equate the “health care professional” with what I had been asked to do, and felt confused and shocked that she had asked me to do something that may have been harmful.

I also felt that the HCP may have misconstrued my comments that I couldn’t undertake this task as an unwillingness to cooperate, as she looked unhappy about it. She did ask why, and I explained. I felt that trying some of the other tasks she set, which looked to be less dangerous, would at least demonstrate that I wasn’t being uncooperative, and most looked like they wouldn’t inflict any damage at first glance, when she demonstrated them.

However, other exercises I tried to do resulted in my neck locking and severe pain when I was told to turn my head to look over my shoulder – and couldn’t. I have neck problems through longstanding inflammation there and an upper spine injury involving a displaced vertebrae, which is sometimes very painful. In addition, the problems in my shoulders also contributed significantly to the level of pain when I turned my neck, and my neck clicked painfully at the base of my skull. 

I was asked to put my hands and wrists in positions that looked impossible to me. I tried, though. I was asked to line the backs of my wrists up with my hands flat, which I couldn’t do, and it hurt me a lot to try this.

Phalens-maneuver
This is called Phalen’s Manoeuvre. I was asked to do what is actually a provocative diagnostic test for carpal tunnel syndrome – which entails compression of the median nerve. The test provokes the symptoms of carpal tunnel problems, in the same way that the painful Finkelstein test provokes symptoms of severe pain in people with De Quervain’s. I have never been diagnosed with carpal tunnel problems, but I do have more than one diagnosis of bilateral De Quervian’s Tenosynovitis, as stated previously.

I tried to do this manoeuvre, even though it isn’t applicable to my condition (though I didn’t know that at the time, I have since researched the test, as I wanted to know why I couldn’t perform it). I couldn’t even get close to managing it, it hurt my shoulders a lot when I tried to align my elbows at right angles with my dropped finger tips, and I couldn’t drop my wrists fully due to an incredible pain and stiffness that I had not expected. The backs of my wrists simply painfully refused to meet.

I do struggle with pain when putting any weight on my wrists, but didn’t realise how much they had stiffened up, restricting their movement. Not being able to perform this movement doesn’t mean I actually have carpal tunnel syndrome. Nonetheless, I feel that given my previous concrete diagnosis, I was put through this painful and traumatic series of medical tests for no good reason. 

This is the problem with a short assessment of complex conditions. Many of my problems and diagnoses go back years, and only some of them are summarised neatly on my consultant’s report. My relationship with my new rheumatologist started in April, my old one moved in 2015. My new rheumatologist decided to “challenge” the previous diagnoses of two former rheumatologists. Her report to my GP was woefully inaccurate because she had not read my notes or listened to what I told herLong story short, she re-diagnosed me, inaccurately, with fibromyalgia, she didn’t read my notes, she sent me for tests and scans I had already had previously, whilst suspending my treatment pending results. The scans and tests took months. That resulted in a serious lupus flare, which culminated in a bout of pneumonia and sepsis. During the time I was in hospital, I was re-diagnosed with lupus following abnormal test results. My having lupus is thought to be the key reason why I had got so ill – unfortunately, lupus leaves me very susceptible to serious infections like pneumonia, kidney infections and sepsis. I now have a new rheumatologist who says I definitely have lupus.

Atos say they won’t carry out ‘diagnostic tests’ but they did.

In the appointment letter from Atos, it says: “The Health Professional will talk to you about how your health condition affects your daily life”. Much of this was covered with the council’s initial care plan report, but I did discuss my health issues and barriers to independence at length during the assessment.

The letter from Atos then says: “This will not be a full physical examination or an attempt to diagnose your symptoms.” 

My neck and shoulders are stiff, painful and I currently have limited mobility in them, yet I was asked to put my hands behind my head, raise my arms and so on. Loud joint cracking, popping, creaking and gasps of pain and my screwed up face didn’t stop the demands of what I felt was the impossible. I was actually sweating and trembling with the effort and pain, and still she did not stop the “examination”. I felt I couldn’t say no, as I would have seemed somehow unreasonable. I kept thinking that if I tried, gently, I was at least showing willing, and that would be okay, but unfortunately I wasn’t. 

It’s difficult to equate these artificial manoeuvres with day-to-day activities, and therefore it is also difficult recognise the impact it would have on my mobility limits before I tried them and to gauge how much a movement in isolation is going to hurt. 

Immediately following the examination/tests, my left calf has inexplicably swollen to twice its normal size, I could feel the uncomfortable tightness in it, and the swelling was visible through my jeans, whilst still with the assessor, and I commented on it.

My pain level has significantly increased everywhere. I had no groin or neck or elbow pain when I arrived until I was asked to do activities that were beyond my capability and that caused me a good deal of needless pain. I felt undignified trying to do those tasks, shocked and dazed at the pain, and sometimes, at how limited my movements have become. It was an extremely distressing and dehumanising experience. I was also shocked at how the effort made me tremble and sweat, and at how my clear distress was completely ignored by a so-called “health care professional”.

Of course I am going to make a formal complaint about this. It shouldn’t cause people so much pain and distress to be assessed for support. And any examination part of the assessment ought to take your medical conditions and descriptions of mobility constraints fully into consideration without such a grueling and painful examination regime.

It is worth bearing in mind that in addition to my own account, medical evidence from my rheumatologist was submitted in advance, and a report of recent assessments by a council occupational therapist who prescribed aids and adaptations, which clearly outlined my mobility difficulties, following two assessments, was also submitted. This was a report written by a qualified professional and was based on her own examination of my level of functionality and mobility while I tried to perform directed tasks in my home, such as climbing stairs, preparing food and using a bath board in my bathroom.

The fundamental difference between the assessments is that the one for my care plan allowed me to undertake tasks at my own pace, with dignity, and the Atos assessment did not. The former also felt like it was a genuine assessment of my needs, with support being the aim, whereas the latter felt like some sort of skeptic’s test to see if a way could be found to claim my account and those of my doctors were somehow incorrect. The Atos assessment was so horrifying because it felt like it was about reluctantly providing support for maintaining my independence as a very last resort only. 

According to the government’s PIP handbook, for a descriptor to apply to a claimant they must be able to reliably complete an activity as described in the descriptor. Reliably means whether they can do so:

 safely – in a manner unlikely to cause harm to themselves or to another person, either during or after completion of the activity.

The descriptors at no point demand that a person completes the Phalen manoeuvre or squats. The brief and painful completion of raising your hands above your head does not demonstrate either a fluctuating ability to do so, or your ability to hold your arms up long enough to, say, wash your hair and rinse it, even on a good day. Nor does it adequately account for severe pain, profound fatigue, coordination difficulty and breathlessness that often impact on any performance of that task. I did point this out, and the fact that the activities had left me in a lot of pain.

It’s now the day after my PIP assessment. I am still in a lot of pain with my joints and tendons. I feel ill, anxious, depressed and I am still shocked and angry. I can’t even manage to wash today. I have also developed pain on the left side of my chest, which feels rather like pleuritis. I feel really unwell, profoundly tired and haven’t felt this bad since my bout of pneumonia. The assessment hasn’t made me ill – I was already seriously ill. But it HAS exacerbated by symptoms. 

No-one should be made to feel worse because of an assessment for support. The activities I was asked to do should have been stopped when it became clear I was struggling. I stated I was in pain, I was visibly sweating, trembling, weak and clearly in a lot of pain with the effort, and as a “health professional”, the assessor should have halted that examination. I am very concerned that unintended harm may be caused by assessors conducting examinations because they do not have qualification, sufficient information or understanding about patients’ conditions.

My condition, for example, has left a trail of individual symptom diagnoses and medical data that goes back many years. With such a complex array of joint and tendon problems, I felt that there was absolutely no consideration of the impact that, say, a hand and wrist manoeuvre may have on a person’s damaged shoulders and elbows, as well as their wrists, or how a neck movement may impact on an upper spine injury and inflammatory shoulder problems, as well as the neck.

Given the assessment report I submitted and medical evidence, in addition to my own account, I feel that such a painful physical examination ought to be restricted to cases of absolute necessity. I don’t believe those simple isolated movements I was asked to do can possibly demonstrate he complex limitations on my day-to-day independence, and how I manage (or don’t) to cope with domestic tasks and general mobility.

The fact I couldn’t do some of them was both traumatising and humiliating, as well as very painful. I am still in a lot of pain as a result. 

The shame of being there to explain to a stranger about your illnesses, the intimate details of your life, your vulnerabilities and why you need help, is difficult enough, without the added distress of being coldly assessed by someone who doesn’t understand your conditions and does not care that what they ask you to do may be traumatising, painful and potentially very damaging.

Image result for PIP disability

Related

What you need to know about Atos assessments

Government guidelines for PIP assessment: a political redefinition of the word ‘objective’ 

Government subverts judicial process and abandons promise on mental health ‘parity of esteem’ to strip people of PIP entitlement

Tory MP says PIP should only go to ‘really disabled’ people, not those with anxiety ‘taking pills 

Disabled mum took fatal overdose after she was refused PIP

Fear of losing disability support led a vulnerable man to a horrific suicide

Theresa May euphemizes savage cuts to PIP when confronted by an angry disabled person demanding democratic accountability


 

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